Are you a young adult survivor of childhood cancer? Have you experienced any late effects? Then this is the research study for you!
Researchers, Kristen Trost, BSW, MSS, Ph.D. candidate (older sibling of a childhood cancer patient and social worker) Dr. Benjamin, Dr. Haney (previous childhood cancer nurse) and Dr. Hoch, of Old Dominion University in Norfolk, VA are interested in understanding why survivors of childhood cancer chose to (or not to) participate in screening for late effects, either going to a specific late effects clinic or working with a primary care physician. We would like for 250 or more childhood cancer survivors who are between the ages of 18-29, who are at least 5 years post treatment to complete a 10 minute, anonymous, online, survey about what influences their decisions.
Survivors have the option to participate in a phone call to discuss in more detail their thoughts on late effects and screening. Responses from the online survey will not be linked to the responses from the phone interview. Survivors do not have to participate in late effects screening to participate in the survey as we want to hear from everyone. From the results of the study, we hope to get a better understanding of what influences a survivors decision to go or not to go to late effects clinics or screening appointments, and use that information to better serve the survivor.
Please click the link to give them your thoughts.