In the young adult cancer space, your voice matters. We want to highlight some of these opportunities for you to weigh in on research that makes an impact. Want to share your voice to help others? Check out the list below!
The Impact of Sibling Cancer Diagnosis on the Sibling Relationship
Siblings of pediatric cancer patients experience unique consequences both positively and negatively by this diagnosis, but too often their needs and concerns are unrecognized or inadvertently neglected during a time when they also need support. If you were a well sibling to a child with cancer, we want to hear about your sibling experience during this time.
Self-Perception and Intimacy after the Cancer Experience (SPICE)
This study aims to explore the foundational elements of sexual self-concept, including sexual health knowledge, interpersonal relationships, and body image, through a one-time survey.
Research Study on Body Image in Young Adults
Cancer can have a significant impact on physical and psychosocial wellbeing. Among young adults diagnosed with cancer, a common concern during and after treatment is body image. Our research aims to develop a resource for young adults who have had cancer that can be integrated into existing and future health and lifestyle programs (these usually focus more on physical health). The present study is the first step in developing this resource. The purpose of this study is to explore the body image information and forms of support that are important to include.
Thriving Together
This is a qualitative study with transgender and gender diverse cancer survivors and their support networks. The study goals are to learn more about how they navigate cancer-related stressors and interactions with health care providers and the health system, as well as to identify possible strategies for increasing support during and after care.
Relationships and Sexual Health in Young Adult Cancer Survivors
Researchers at the Dana-Farber Cancer Institute are conducting a research study for young adult cancer survivors about relationships and sexual health. The purpose of this study is to learn directly from young adults about how to best ask about concerns in these areas.
Burnalong Pilot Study: Group-Based Physical Activity for AYA Cancer Survivors
Cedars-Sinai Medical Center’s Cancer Research Center for Health Equity is currently running a study to understand adolescents and young adults (AYA) cancer survivors’ experiences with a virtual physical activity and social-networking program. We would appreciate your help in expanding our understanding of the value of virtual physical activity platforms, and the role physical activity can play in supporting your health and well-being. If you are a cancer survivor between the ages of 18-39 who has completed active cancer treatment, we hope that you will consider participating.
Sexual Health and Relationships After Cancer
Researchers at the Dana-Farber Cancer Institute are conducting a research study for young adult cancer survivors about relationships and sexual health. The purpose of this study is to learn directly from young adults about how to best ask about concerns in these areas.
STEP-YA
STEP-YA teaches survivors how to make changes to sleep habits and behaviors in order to improve sleep.
CanRestoreFunction: Cancer-Related Fatigue Management
Many individuals with cancer who are receiving or who have received chemotherapy and/or radiation develop fatigue that prevents them from doing daily activities that are important to them. This research seeks to discover strategies to manage and lessen this feeling of fatigue.
Opening the Conversation
This is a clinical trial sponsored by the American Cancer Society, where we will be testing the helpfulness of two programs designed to teach breast and gynecological cancer survivors and their partners to communicate and cope with physical, emotional, and relationship challenges after cancer.
