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Research Roundup

Here at Cactus Cancer Society, we’re always interested in amplifying the voices and experiences of young adults facing cancer, and making sure this population is represented in research.  Click on the study titles below to learn more about each research opportunity and how you can use your story to help others!

Study Description

Many individuals with cancer who are receiving or who have received chemotherapy and/or radiation develop fatigue that prevents them from doing daily activities that are important to them. This research seeks to discover strategies to manage and lessen this feeling of fatigue.

 

Am I Eligible to Participate?

You are eligible for this study if:

  • You are 18 or older
  • You are receiving or have received chemotherapy and/or radiation therapy
  • You have been diagnosed with cancer within the last 5 years
  • You are experiencing fatigue
  • You do not have Stage 4 (cancer that has spread)

 

What Will I Be Asked to Do?

You will be asked to:

  • Complete an online screen followed by three online surveys
  • Participate in 10 online weekly visits using Zoom (each visit 20-30 minutes)
  • Complete an individualized exercise program 3 times a week in the comfort of your home
  • Complete 4 interactive online educational modules

 

Will I Be Compensated?

Participants will receive an individualized exercise program.  At the end of the study, you will be compensated for your time with up to $80 in gift cards of your choice.

 

How Do I Sign Up?

To sign up to participate, visit https://redcap.link/UCUDCRF

If you have any questions, please contact Anne Fleischer at CaRehabResearch@gmail.com

Study Description

The purpose of the study is to interview breast cancer patients about their cancer journey and how they prefer to talk about treatment options. The goal is to learn what matters most to patients as they talk about their treatment options, how well treatments work, and possible side effects.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are a female
  • Are over the age of 18
  • Were diagnosed with breast cancer in the past year
  • Live in the United States 

What Will I Be Asked to Do?

You’ll be asked to participate in a single one-hour interview, which will take place on Zoom or by phone.

Will I Be Compensated?

Participants will receive a $50 Amazon gift card as compensation.

How Do I Sign Up?

To sign up to participate, please email Lila Rabinovich at lilarabi@usc.edu to schedule an interview.

Study Description

The purpose of the study is to learn more about parents’ communication experiences as a caregiver of an AYA child with a blood cancer diagnosis.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are the parent caregiver of a child with a blood cancer diagnosis
  • Have a child who was diagnosed or relapsed within the past two years
  • Have a child who was diagnosed or relapsed between the ages of 15 and 29
  • Are age 18 or older
  • Are English-speaking and live in the US or US territories

What Will I Be Asked to Do?

You’ll be asked to complete one 30-minute survey.

Will I Be Compensated?

Participants will receive a $25 Amazon gift card as compensation for completion of the survey.

How Do I Sign Up?

To sign up to participate, visit https://ufl.qualtrics.com/jfe/form/SV_4Zd3qn4VmLrFlTU

Study Description

This study uses digital tools to help young adult cancer survivors develop healthier eating and activity habits. The 3-month program is delivered using a smartphone app, digital health tools, and text messages. It also provides an opportunity to participate in important research to help us understand more about ways to help YACS lead healthier lifestyles. 

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are between the ages of 18 and 39
  • Were diagnosed with cancer (excluding non-melanoma skin cancer) at age 15 or older
  • Have completed cancer treatment
  • Are not exceeding physical activity guidelines
  • Own a smartphone with data and text messaging plan

What Will I Be Asked to Do?

Participants will be asked to use an app and a simplified approach to track your foods to help you make positive changes in your eating, and an activity tracker to help increase your physical activity. All participants will receive a kick-off videochat session with a health coach, and a behavior change program delivered through the study smartphone app, which will include lessons, resources, personalized feedback, tools to help them keep track of their diet and physical activity, and text messages to encourage healthy habits. You will be asked to complete online questionnaires and other remote measurements such as weighing on their own scale at home, at the start of the study, after 6 weeks, and after 3 months.

Will I Be Compensated?

Participants will receive a Fitbit activity tracker and a $25 Visa gift card for completing the 3-month assessments.

How Do I Sign Up?

To sign up to participate, visit www.uncweightresearch.org/yacsheal

Study Description

The purpose of the study is to better understand the influence of environmental factors on adolescent and young adult cancer survivors’ quality of life, and to better understand the coping strategies that help to reduce the impact of social and environmental challenges. 

Am I Eligible to Participate?

You are eligible to participate if you:

  • Were diagnosed with cancer between the ages of 15 and 39
  • You completed active cancer-directed therapy more than 6 months ago
  • You live in the United States 

What Will I Be Asked to Do?

You’ll be asked to complete a one-time online survey.  You’ll also have the opportunity to participate in a Zoom or telephone interview.

Will I Be Compensated?

Participants will receive a $25 e-gift card in compensation.

How Do I Sign Up?

To sign up to participate, visit https://redcap.vcu.edu/surveys/?s=NWDRWL7YXWYMNHM3

Study Description

The purpose of the study is to hear about social connections (in person and online) and cancer support on social media. 

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are between the ages of 22 and 39
  • Received your first cancer diagnosis when you were between the ages of 15 and 39
  • Received cancer treatment in an adult cancer care center
  • Use social media

What Will I Be Asked to Do?

You’ll be asked to complete a survey with the option to consent to participate and tell us about yourself. You’ll then be asked to participate in a 60-minute interview on Zoom. During the interview, we will share some social media posts to get your reactions and recommend using a laptop. No travel is required. 

Will I Be Compensated?

Participants will receive a $50 e-gift card as compensation.

How Do I Sign Up?

To sign up to participate, visit http://bit.ly/SIYAinterviews

Study Description

The purpose of the study is to learn about the benefits and challenges you encountered while providing for the present and future needs of your companion animal(s). We hope to understand how best to support you in knowing how to address financial, social, and emotional challenges encountered in caring for your companion animal, concerns you have, as well as the benefits of having a furry companion during your treatment and recovery.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are an adult
  • Have been diagnosed with cancer
  • Have been the primary guardian of at least one dog or cat for a minimum of 6 months

What Will I Be Asked to Do?

You’ll be asked to complete a short (10-15 minute) anonymous survey about the benefits and challenges you have encountered while providing for the present and future care needs of your companion animal(s).

Will I Be Compensated?

Participants will be entered in a raffle for a $100 gift card to Chewy pet supply.

How Do I Sign Up?

To sign up to participate, visit https://col.st/DaVdt

Study Description

This project aims to increase social awareness about young adult cancer.  This advocacy campaign will bring together photographs and brief narratives from young adult cancer patients and survivors.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are a young adult who has been diagnosed with cancer
  • Understand the day-to-day experiences of life with cancer during treatment and the challenges and triumphs of life outside of your medical care

What Will I Be Asked to Do?

A total of 5 young adult cancer patients and survivors will be selected to join this project’s Young Adult Advisory Board, to guide the development of the theme, title, and marketing plan for a national photo exhibit that will focus on cancer in young adulthood.  Participation includes ten 1-hour online group meetings, with limited outside work requested to help you prepare for each meeting.  You’ll also be asked to complete a 15-minute online survey after participating in the study.

Will I Be Compensated?

Participants will receive a $1,000 consultant fee.  This will come as $500 after the first Advisory Board meeting and $500 after the last Advisory Board meeting.

How Do I Sign Up?

To sign up to participate, visit https://colostate.az1.qualtrics.com/jfe/form/SV_e4i4BcctWW8pbfg

Study Description

This is a clinical trial sponsored by the American Cancer Society, where we will be testing the helpfulness of two programs designed to teach breast and gynecological cancer survivors and their partners to communicate and cope with physical, emotional, and relationship challenges after cancer.

 

Am I Eligible to Participate?

This study is recruiting both survivors and their partners.  Survivors are eligible for this study if:

  • You had a breast or gynecologic cancer diagnosis between the ages of 18-39
  • You were diagnosed between 6 months and 5 years ago
  • You have a partner who is age 18 or older
  • Both partners agree to participate
  • You reside in the United States

 

What Will I Be Asked to Do?

 The program consists of couples participating in 4-5 weekly sessions with a trained counselor. These sessions will last about 90 minutes. The programs are conducted entirely via videoconference (Zoom), so participants would not have to travel anywhere to participate.

 

Will I Be Compensated?

Each participant will receive a $10 eGift card for completing each online survey (3 surveys total). Couples may be asked to participate in a qualitative interview and each participant would receive a $20 eGift after the interview.

 

How Do I Sign Up?

If you are interested in participating, fill out the contact form on the study website by clicking here: https://health.oregonstate.edu/research/programs/tact/oc

Study Description

Sexual and reproductive health are important topics for many colorectal cancer patients and survivors. However these are often overlooked by providers and few resources are available to help young couples navigate these challenges. We need your help to better understand how young adult colorectal cancer survivors and their partners cope with the impact of the illness on their sexuality and fertility. By sharing your story, your voice can shape future cancer care!

Am I Eligible to Participate?

You are eligible to participate if you:

  • Have received a diagnosis of colorectal cancer (stages I-IV) in the past 5 years
  • Were between 18 and 39 years of age at time of diagnosis​​​​
  • Are involved in a romantic relationship with a partner
  • Are currently older than 18 years

Partners are eligible to participate if they are older than 18 and are English-speaking

What Will I Be Asked to Do?

You’ll be asked to complete an online survey which will take approximately 30 minutes (both partners). Some couples will also be invited to take part in an hour-long online interview with the research team.

Will I Be Compensated?

A $30 Amazon gift-card is offered when both partners have consented to the study and have completed the survey, for a total of $60 per couple. A resource list for sexuality, fertility, and emotional well-being will be provided to all respondents. Additional compensation is offered to couples completing the online interview ($120 per couple).

How Do I Sign Up?

To sign up to participate, visit https://tinyurl.com/AYASHARE

Study Description

The purpose of the study is to culturally adapt an evidence-based psychotherapeutic intervention for Mandarin-speaking and Vietnamese speaking Americans with metastatic cancer.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are 18 years of age or older
  • Are living with solid tumor metastatic cancer (cancer that spread from where it first started to a distant part of the body, often Stage 4)
  • Are of Chinese or Vietnamese heritage
  • Prefer speaking in Mandarin or Vietnamese

What Will I Be Asked to Do?

You’ll be asked to do a 10-15 minute demographic phone call, a 1 hour Zoom/phone interview, and a 30-45 minute follow-up Zoom/phone interview.

Will I Be Compensated?

Participants will receive $80 in e-gift cards.

How Do I Sign Up?

To sign up to participate, email the study team at dawn@hs.uci.edu or call at (213) 537-9209

Study Description

AYA Connect provides digital tools and strategies to help AYAs adopt healthier habits, reach a healthier weight, and improve their overall health. It also provides an opportunity for AYAs to participate in important research to help us understand more about ways to help post-treatment AYAs lead healthier lifestyles.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are currently aged 18-39
  • Were diagnosed with cancer (excluding non-melanoma skin cancer) at age 15 or older
  • Have completed cancer treatment
  • Have a body mass index between 25 and 50
  • Own an iPhone with a data and text messaging plan

What Will I Be Asked to Do?

All participants will receive a comprehensive digital weight management program focused on improving diet quality, increasing physical activity, and reaching a healthier weight. The program components include a Fitbit physical activity tracker, a smart scale, access to the study mobile app, a kickoff session by videochat with a health coach, and tailored feedback messages in the study app. You will be asked to complete online questionnaires and other measurements at the start of the study and after 3 and 6 months. You will be sent a Fitbit to track physical activity for 7 days and a digital smart scale to measure your weight at all time points. Most importantly, you will learn strategies that will help you promote a healthier lifestyle for today and the future. 

Will I Be Compensated?

Participants will receive a Fitbit activity tracker and digital smart scale (valued at up to $195 for both depending on Fitbit model selected) to track your activity and weight. Participants  will also receive up to $120 for completing all study questionnaires and measurements. Participants local to Chapel Hill, North Carolina have the option to complete their measurements at our research center for an additional $10 per measurement visit.

How Do I Sign Up?

To sign up to participate, visit www.uncweightresearch.org/aya-connect

Study Description

The purpose of the study is to better understand the day-to-day experiences of caregivers of young adult cancer patients in order to learn how to enhance caregiver well-being.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are age 18 or older
  • Are currently an informal caregiver
  • Care for a patient who is between the ages of 18 and 35

What Will I Be Asked to Do?

You’ll be asked to complete two 30-minute surveys (one at the beginning and one at the end of the study), as well as 4 daily 3-minute surveys over the course of two weeks.

Will I Be Compensated?

Participants will receive up to $100 in compensation.

How Do I Sign Up?

To sign up email Ximena Giesemann at ximena.giesemann@cgu.edu

Study Description

The purpose of the study is to test an app-based wellness intervention for blood cancer patients experiencing sleep disturbances. This study is completely remote.

 

Am I Eligible to Participate?

You are eligible to participate if you:

  • Are 18 years of age or older
  • Live in the USA
  • Have received a blood cancer diagnosis and are currently undergoing treatment
  • Experience sleep disturbances, such as difficulty falling asleep, staying asleep, or poor quality of sleep
  • Own a smartphone

 

What Will I Be Asked to Do?

Your participation involves:

  • One 30-minute virtual meeting with a research assistant
  • Completing online surveys
  • Providing three blood samples over the course of the 20-week study at a lab close to you
  • Tracking sleep using a small device and daily diary
  • Using a wellness app for 10 minutes per day for 8 weeks

 

Will I Be Compensated?

Participants will receive $100 in compensation.

 

How Do I Sign Up?

To learn more, visit https://cancer.uthscsa.edu/heme-study or email hemestudy@uthscsa.edu

To sign up to participate, visit https://redcap.link/hemescreening

Study Description

The purpose of the study is to test whether an informational website about fertility and family building after cancer is helpful for young female cancer survivors. 

Am I Eligible to Participate?

You are eligible to participate if you:

  • Were assigned female sex at birth
  • Are between the ages of 18 and 45
  • Have completed primary cancer treatment (women on hormone therapy or long-term adjuvant maintenance therapies are eligible)
  • Desire to have a child (or more children) or are uncertain about family-building plans 

What Will I Be Asked to Do?

You’ll be asked to complete four online 30-45 minute surveys over the course of 12 months.

Will I Be Compensated?

Participants will receive $30 in compensation for each survey, for a total possible compensation of $120.

How Do I Sign Up?

To sign up to participate, visit https://redcap.link/8aaq1ehv or email us at roadmaptoparenthood@stanford.edu

Are you a researcher looking to spread the word about your study?

If you have a research opportunity open to young adults facing cancer, feel free to share it with us here.