Skip to content
glasses on a notebook

Research Roundup

Here at Cactus Cancer Society, we’re always interested in amplifying the voices and experiences of young adults facing cancer, and making sure this population is represented in research.  Check out the research opportunities below to see how you can use your story to help others!

Evidencias de validez de la Escala de Actitud Juguetona de los Padres (Escala AJugar)

Study Description

This study is part of a broader project with the goal of development of a play-based intervention targeted to mothers, who are cancer patients, and their young children. The purpose of this stage of the project is the validation of the Spanish questionnaire “Escala AJugar”. The questionnaire is about play between mothers and their children and will help to inform the play-based intervention.

Am I Eligible to Participate?

You are eligible for this study if you:

  • Are a Hispanic/Latina mother
  • Are 21 years or older
  • Are a cancer patient (of any type) and are under treatment
  • Have at least one child between the ages of 2 years and a half and 7 years, 11 months
  • Are able to read and understand Spanish

What Will I Be Asked to Do?

Participants will be asked to complete the Spanish questionnaire Escala AJugar, available online. Completing the questionnaire takes about 15 minutes.

Will I Be Compensated?

Mothers will receive a $10 Amazon gift card by email, in gratitude for their participation.

How do I sign up?

The questionnaire is available online at escala-ajugar.org. To get the access code, please reach out to Rosa Román (PI): rosa.roman2@upr.edu; 787-365-9859 or Sofía Ayala (Co-PI): sofia.ayala@upr.edu; 787-247-0302

The BurnAlong Study: A Virtual Peer-Based Physical Activity Network for Young Adult Cancer Survivors

Study Description

We are currently conducting a study to understand Young Adult (ages 18-25) cancer survivors’ experiences with a virtual app-based physical activity program, BurnAlong. Participants can be new to exercise as this program is individualized and adaptive.

Our goal is to ultimately develop quality physical activity programs for Young Adult cancer survivors that promote long-term physical, psychological, and social health.

Am I Eligible to Participate?

This study is open to:

  • Cancer (all types) diagnosis between the ages of 15-25
  • Between the ages of 18-25 during study participation
  • At least 3 months post-active treatment completion
  • Access to and ability to use a computer, tablet, or phone device with internet access
  • Ability to understand and read English
  • Answers “no” to all questions on the Physical Activity Readiness Questionnaire
  • Not currently meeting physical activity guidelines per leisure-time physical activity participation questionnaire
  • Written and informed consent obtained from participant and ability for participant to comply with the requirements of the study
  • Not currently pregnant
  • No planned active treatment within 3 months of the study start date
  • No hearing loss or vision impairment that would preclude the participant from accessing and using the app (use of hearing aids or visual aids is acceptable) based on self-report

What Will I Be Asked to Do?

Young Adult cancer survivors will be given access to BurnAlong, a virtual physical activity platform, and asked to engage in 3 physical activity sessions with a friend or family member a week for three months.

They will also have access to a private social network group for adolescent and Young Adult cancer survivors and will be asked to post at least 2 times per week for three months.

Participants will be asked to participate in a monthly group exercise session led by our team’s Exercise Physiologist along with other study participants.

Participants will be mailed a Fitbit and asked to wear it and sync its data over the course of the three month intervention.

Will I Be Compensated?

Participants will be given a Fitbit device.

How do I sign up?

Email the study coordinator, Jessica Capaldi at Jessica.Capaldi@cshs.org or the principal investigator, Dr. Celina Shirazipour at Celina.Shirazipour@cshs.org

Health Promotional Behaviors of Childhood Cancer Survivors Compared to Their Peers

Study Description

This study will determine if pediatric cancer survivors who received anthracyclines as part of the treatment regimen, and who have attended a Survivorship Clinic are practicing more health promoting behaviors compared to their age-matched peers who have no cancer diagnosis. Specific attention will be paid to behaviors related to late effects, including physical activity, nutrition, stress management and health responsibility. The study will include consideration of differences in their performance based on physical activity, nutrition, spiritual growth, interpersonal relationships, heath responsibility, and stress management. Personal and demographic characteristics, most importantly self-efficacy that might influence the frequency of health promoting behaviors will also be evaluated.

Am I Eligible to Participate?

You are eligible for this study if:

  • You are between the ages of 18 and 22
  • You are a pediatric or young adult cancer survivor
  • You have attended a cancer survivorship clinic for 2 years
  • You received an anthracycline as part of your chemotherapy regimen

What Will I Be Asked to Do?

You will be asked to complete an online questionnaire on health promoting behaviors and self efficacy.

Will I Be Compensated?

Participants who complete the questionnaire will be entered to win a $100 gift card of their choice.

How Do I Sign Up?

Fear of Recurrence App Study

Study Description

This study is evaluating an app designed reduce fear of recurrence in individuals with a history of cancer who have completed active treatment through a randomized controlled trial. The study involves use of apps over a 4-week period as well as the completion of questionnaires. There is also a completely optional portion of the project that involves collection of salivary cortisol and/or electroencephalogram (EEG) recordings.

Am I Eligible to Participate?

You are eligible for this study if:

  • You are 18 or older
  • You have a history of a rare cancer, including gynecological, pediatric, or rare skin cancers, without metastases
  • You have completed active treatment

What Will I Be Asked to Do?

You will be asked to:

  • Use 1 or 2 new mobile apps designed reduce fear of recurrence over a 4-week period
  • Complete three online questionnaires
  • There is also a completely optional portion of the project that involves collection of salivary cortisol and/or electroencephalogram (EEG) recordings

Will I Be Compensated?

Participants will receive $50 after completing all study activities.

How Do I Sign Up?

Please contact Maya Goldman at aimstudy@mskcc.org. Individuals can also fill out this form to see if they are eligible: https://redcap.link/MSKAimStudy

Exploring Breast Cancer as Disability

Study Description

The purpose of this research study is to learn about the impact of having breast cancer on women’s lives and participation in their daily activities following breast cancer diagnosis and treatment. Also, this study hopes to learn from women who have had breast cancer what connections, if any, exist between life after breast cancer and disability. Participants in this study will complete 2 individual interviews and 1 focus group, or group interview, to share their experiences navigating life after diagnosis and treatment for breast cancer.

Am I Eligible to Participate?

You are eligible for this study if:

  • You are currently between the ages of 18-50
  • You were diagnosed with breast cancer when you were between the ages of 18-45
  • You were diagnosed with Stage I, II, or III breast cancer at least one year ago
  • You have finished active treatment for your breast cancer (chemo, surgery, radiation, or immunotherapy; hormonal therapy does not count as active treatment)

What Will I Be Asked to Do?

You will be asked to complete two individuals interviews and one focus group, either via Zoom or in person if you are in the Chicago area (based on your preference)

Will I Be Compensated?

Participants will receive $25 for each session they attend, for a total of $75.

How Do I Sign Up?

To sign up to participate, email Amy McArthur at aroder2@uic.edu

CanRestoreFunction: Cancer-Related Fatigue Management

Study Description

Many individuals with cancer who are receiving or who have received chemotherapy and/or radiation develop fatigue that prevents them from doing daily activities that are important to them. This research seeks to discover strategies to manage and lessen this feeling of fatigue.

Am I Eligible to Participate?

You are eligible for this study if:

  • You are 18 or older
  • You are receiving or have received chemotherapy and/or radiation therapy
  • You have been diagnosed with cancer within the last 5 years
  • You are experiencing fatigue
  • You do not have Stage 4 (cancer that has spread)

What Will I Be Asked to Do?

You will be asked to:

  • Complete an online screen followed by three online surveys
  • Participate in 10 online weekly visits using Zoom (each visit 20-30 minutes)
  • Complete an individualized exercise program 3 times a week in the comfort of your home
  • Complete 4 interactive online educational modules

Will I Be Compensated?

Participants will receive an individualized exercise program.  At the end of the study, you will be compensated for your time with up to $80 in gift cards of your choice.

How Do I Sign Up?

To sign up to participate, visit https://redcap.link/UCUDCRF

If you have any questions, please contact Anne Fleischer at CaRehabResearch@gmail.com

Are you a researcher looking to spread the word about your study?

If you have a research opportunity open to young adults facing cancer, feel free to share it with us here.