It’s March!
As you probably know, this month has a lot of things going on – St. Patrick’s Day (the 17th), Read Across America Day (the 2nd), and during this entire month, nominees will be raising money for the Young Adult Cancer Advocate of the Year (YAAY) award!
If you didn’t see the nominees, they are:
Mursal Bayaz
Yes, I am a nominee again! I will be honest with you guys – I did not expect to be selected! I was expecting a whole new slate of great advocates to be chosen to raise money for Cactus Cancer. However, when I got the email, I had to accept the nomination.
You might be wondering why I accepted it, given my expecting it to be all new people? It’s simple: if you have a voice, if you have a platform, if you have a good story, why not use it? I raised a lot of money last year – $15,513 – I went in expecting to maybe raise $1,000, even though I set my goal at $5,000, I did that just to have an even number of “enough money to pay for 100 kits for workshops”, never expecting to get anywhere near that.
Then I kept getting email after email, notifying me of donations. Soon I sped past $1,000, then $3,000, then I hit $5,000, and even higher and higher (down to the last minute! I had something like 15 donations in the final 15 minutes!) – the amount of supporters I had shocked me. I ended up raising enough to pay for 310 kits!
Over the past year, since my win, I have had a pretty decent year – I have met up with cancer friends and done some fun things (antiquing, trivia nights, eating tasty food, and other activities). I decided to reach out to my fellow YAAY winner (and friend!) Ashley Landi, and asked her for advice on everyone’s fundraising. She gave me the following advice: “It can be awkward and uncomfortable to ask people for money. Put yourself out there as much as you can because you never know how far of a reach you’ll be able to attain.”
So, if you want to raise money, you need to leave your comfort zone and enter the Awkward Zone!
However, I will tell you that advocacy is hard – you’re putting yourself out there. You are laying yourself bare for the world at large. You are deciding to go completely public with your diagnosis for anyone to find – be it your fifth-grade teacher or your elementary school bully, your work will be one of the first things to show up online about you (…depending on how common your name is). If you are going to tell your story, if you want to become an advocate, you need to craft your story – you want the genuine you to be felt in every word. As an advocate, you want people to feel what you feel and be able to walk in your shoes. You want them to know how the cause you are advocating for makes you feel – make your emotions felt, don’t be cold and clinical like your doctors are when talking about your cancer.
YAAY is about telling your story and spreading the message of Cactus Cancer’s mission. So I have told you guys my story, and you can read the stories of my fellow nominees on their pages, so I reached out to them asking them a question: “So, you’re participating in the YAAY. People know about our cancer experiences from our pages, and some might know us from the YA community at large. What’s something they might not know that you want to share? Maybe one of your hobbies, a TV show you’re enjoying, a song you can’t get out of your head, whatever comes to your mind!”
Janelle: “Lately, I’ve been watching The Traitors and The Beauty. I’m also watching Vanderpump Rules for the first time and really enjoying it! Some new songs I have been listening to are “I Don’t Think It’s The Right Time for Emojis” by Hot Mulligan, “Growing Up” by Hilary Duff, and “Gut Punch” by Nick Jonas. The elder emo in me always goes back to listening to old Taking Back Sunday, Fall Out Boy, and Dashboard Confessional, though! I enjoy aerial flow yoga classes and Broadway shows/musicals in my free time. I saw “Dear Evan Hansen” last week at a local theater and “Stereophonic” in downtown Chicago earlier this month.”
Tris: “Something people might not know about me is that I’ve been trying to share my Puerto Rican roots over the last few years with my husband and daughter. I’m half Puerto Rican on my mom’s side, and after losing her last year, I’ve been trying to make more of an effort to share the culture, not only because it’s played such a big part of my life, but because it’s up to me to pass that down to my daughter. We’ve visited the island as often as we can – we most recently were there last summer for Bad Bunny’s residency! I’ve been learning to make some new recipes, reading up on the history of the island, and brushing up on my Spanish (I’m unfortunately a no sabo kid IYKYK).”
Emily: “Something people might not know? I still laugh. A lot. My life is not all heavy conversations and medical terms. There are dance parties in the kitchen, messy school mornings, and moments where cancer feels like background noise instead of the headline. I don’t want cancer to be my whole identity. It’s part of my story — but it’s not the whole book.”
Ben & Olivia: “Olivia and I were lucky enough to work in Hawai’i for six weeks in the summer of 2022. We had such an amazing time, and since then, have made it a point to try and experience more with each trip back. We had our wedding on the Big Island. We have done just about every hike at Hawaiian Volcanoes National Park. We had been up and down and all over the island. However, we had never been lucky enough to be on the island during a volcanic eruption. That is, until our most recent trip.
We arrived on the island on January 22nd. On the morning of the 24th, there was a little lava visibly overflowing from the vents on the park’s volcano cams, so we started the two-hour drive across the island to see our first eruption. When we were getting close to the park, we could see crazy clouds and colors rising in a dark column. As we arrived at the entrance, ash and pieces of tephra (light pieces of lava, ranging in size from pebbles to beach balls) were falling in the area like new snow. From the overlook at Volcano House, we were able to see two separate 1,500 feet-tall fountains of lava.
It was easily the coolest thing I have ever seen in my life. We felt pure joy and adrenaline. Many amazing things happened to us in the past three years of cancer, but those took place amidst crisis and in spite of despair. The natural display of a volcano erupting mirrored our internal release of all the trauma and grief from these three years. We’re still buzzing from the high of the experience, and can’t wait to return to one of our favorite places on Earth.”
Samantha: “Something that everyone may not know about me is that at the age of 30, I had already been skiing for 28 years. My parents decided to start teaching me at 18 months old, so I basically learned it while I learned to walk, and I still love to do it to this day. I assume this long history with the mountains is why I love and miss them so much – whether I’m skiing, hiking, or just basking in their glory, the mountains are my favorite place to be!”
Sarah: “One thing that many people may not know about me is my involvement in the realm of childhood cancer. When I was younger, as a survivor, I had no clue as to the support that had been created for children with cancer. It was not until after my young adult diagnosis and becoming involved in the AYA population. I had never even met another childhood cancer survivor. When attending CancerCon (a conference for AYA cancer) a few years ago, while in conversation with a volunteer with whom I shared that I was a pediatric neuroblastoma survivor, she told me that she actually knew another survivor of neuroblastoma. Through that person, I was put into contact with my now good friend Mariah, who made a huge difference in my life, and through her, I became involved with the Coalition Against Childhood Cancer (which is an awesome organization). Not long after meeting Mariah, I quickly became involved in CAC2, and have been able to digitally volunteer for the Toolkit that they created, as well as work on other projects that they are doing. Being able to finally meet other pediatric survivors as well as become involved and help, has made a huge positive impact on my life. Two of my all-time favorite bands are Mumford and Sons and Florence and the Machine. I am not one for loud places, especially the slightly chaotic environment of a concert. So far, those have been my two ‘bucket list’ concerts. As Mumford and Sons had broken up a while back, I didn’t think I would get the chance to see them. That changed as they went back out on tour last year, and I was able to go. It would be safe to say that Florence and the Machine is my favorite band, and their music really helped me during my leukemia diagnosis and treatments. I am very excited as I will finally be seeing them live later this year. “
For me, one of my hobbies is genealogy – family history. If you are interested in genealogy and want to learn how to do it, it’s easier than you’d think! You don’t need to pay to do it – not even a free trial somewhere! You can make a free account on Ancestry.com (you do not need a free trial!) and make a tree that is private and unsearchable, then you go to FamilySearch.org and use that to research. For Americans, start out by looking at people who you know were alive in 1949 or earlier – they should be in the 1950 Federal Census. Then you go back from there.
In terms of music? I have been listening to MUSCLE MEMORY by BLÜ EYES (check out her other songs, they might resonate with you – she’s a chronically ill musician) and whatever Spotify has put on my Discover Weekly, Release Radar, and Daylists.
Need a TV show? I’ve been watching The Pitt and Hacks. In case you haven’t seen The Pitt, it’s a medical show that takes place in an ER – each episode takes place over one hour of a shift, and it is very realistic medical-wise (at least from what I have read). Hacks is a dark comedy about an aging Vegas comedian who needs to freshen up her act to keep her show and ends up hiring a writer to help her out. The two bond over time.
Now, if you want to dip your toes into advocacy, you should check out Cancer Nation– they help bring together individuals who are affected by cancer and work with the people who can cause change to help improve the quality of care and life post-diagnosis.
So what if you don’t want to get into advocacy, but you want to help others? I’ve linked to peer support organizations like Imerman Angels and Cancer Hope Network in the past, but some cancer-specific organizations have ones, like Blood Cancer United’s First Connections Program, the Colorectal Cancer Alliance’s Buddy Program, and Young Survival Coalition’s Peer Matchmaking (YSC is a breast cancer organization).
I hope all of you have a wonderful March, and I will talk to you again in April (the first week of April is AYA cancer week!). If anyone has a question for me, wants a specific resource, or wants me to write on a specific topic, message me on Instagram: @codyhatescancer or email programs@cactuscancer.org
Do you have a YAAY nominee you want to support? There are a few ways you can support your favorite nominee(s):
- Donate to their campaign! If you can only donate a dollar – donate a dollar!
- Share their social media posts!
- You can start your own fundraiser and join their team!
- Cheer them on! Encourage them on social media, text messages, letter, carrier pigeon, however you want to communicate with them!
How do you do the third one? You click on the link to their page up above, and then click on the green “Fundraise” button next to “Team Members” – put in the information for your page (and make sure to select the person you want to raise funds under! This is very important!), and then you are set up!
