Awkward Auntie Question No. 27

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: Because I was 22 and worked a low-paying job at the time, and freezing eggs was not covered by my insurance, I was unable to preserve my fertility due to a lack of money. I have been hesitant to date anyone because I am unsure of my ability to have children, and I would like to be upfront with anyone I date so they can be fully informed before becoming overly attached. Is it realistic to think this way? Would a doctor be able to order tests to check my fertility without me actively trying to conceive? Is it weird to want these types of test results prior to getting into a serious relationship? My mom is usually with me at my appointments, so I have been unable to comfortably discuss this with my oncologist.

Answer: Your question is a reasonable one (and not at all weird!), and I understand your concern and need for accurate information. Yes, there are tests that can suggest your fertility status but remember that any results will be a ‘snapshot’ of your hormonal status at the time of the test(s) so may not be relevant in the future. You can also ask the nurse who works with your oncologist to make an excuse for you to speak to the oncologist alone. But…and I don’t know what your relationship is with your Mom….she may have the same questions about your fertility as you do! I am the mother of 2 young adults, and I hope they can talk to me about this kind of stuff. But everyone is different, of course. I would hope that your Mom is a source of support to you as you have gone through your cancer and would be a support to you with any fertility-related concerns.

You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Awkward Auntie Question No. 28

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: Curious … If I am taking Temodar (oral chemo for brain cancer), can I still receive oral sex from my partner? 

Answer: Oral chemotherapy medications can be present in bodily fluids, including vaginal fluids, for the entire duration of treatment and for at least 48 to 72 hours after the last dose. While the risk of harm from limited exposure is considered low, it is important to take precautions to protect partners from potential exposure to these medications. Using condoms or, in your case, a dental dam, will provide protection for your partner. The reality is that there is hardly any research into oral chemotherapy and body fluids.  The advice above is what is for IV chemotherapy. What information have you received from your oncology providers? They should be advising you, and their assumption that you are not sexually active is not an excuse!



You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Awkward Auntie Question No. 26

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: Struggling with menopausal symptoms after cancer and feel lost 

Answer: Chemical menopause is generally WAY worse than a natural menopause (usually somewhere around 52 years of age). There are things that can help with the symptoms:

  • Hot flashes – respond well to some antidepressants, and those can also help with anxiety. Wearing cotton clothes and layers, cotton or bamboo bedsheets, exercise, and avoiding alcohol and spicy food mah help too.
  • Low libido – this is a challenging one, often tied to altered body image, pain, and emotional issues. RESPONSIVE desire (feeling desire once you are aroused) may be the norm for you now. ‘Come as You are’ by Emily Nagoski is a good book to read about this. Also, anything by Dr. Lori Brotto.



You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Awkward Auntie Question No. 25

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: During surgical menopause, when I can’t use hormone therapy or creams, how can I keep my vagina from atrophying? How can I continue to have penetrative sex without pain if vaginal moisturizers alone aren’t working?

Answer: If your cancer is not hormone-dependent, there is no reason why you cannot use hormone replacement therapy. Even for women with hormone-dependent breast cancer, there is good evidence that local estrogen is safe. Vaginal moisturizers are for daily comfort and not for penetration. For any kind of sexual touch and penetration, you need to use a silicone-based lubricant and reapply it during sexual activity if it starts to dry up. It is also important for you and your partner to ensure that you are aroused (don’t rush!) before penetration.

You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Ask Perrie: Looking for Clarity

Dear Perrie,

I have early-stage breast cancer. Drs give me an excellent prognosis, friends treat me like I’m already on my deathbed. They put doubts in my head about my prognosis. How do I make plans for the future, not knowing if the cancer will come back? Who should I trust? How do I live again once I am cancer-free?

Dear Looking for Clarity,

What you’re describing makes so much sense. It can feel really disorienting when your medical team is offering reassurance and hope, while the people around you are reacting with fear, grief, or worst-case scenarios. It’s hard to feel grounded in your own reality when everyone else seems to be projecting a different one onto you.

One thing I think is important to remember is that many people hear the word “cancer” and immediately associate it with death, regardless of stage, prognosis, or treatment plan. Even for me, prior to being diagnosed, I had no idea that many types of cancer can actually be curable or more like a chronic disease. Most people simply are not educated on the nuances of cancer care. Early-stage breast cancer with an excellent prognosis is very different from advanced disease, but to someone outside the cancer world, those distinctions may blur together. Their reactions may come from fear, love, helplessness, or misunderstanding, but that does not make them experts on your future.

When it comes to your prognosis and medical reality, your oncology team is the most informed source. They are the people reviewing your scans, pathology, treatment response, and the data specific to your diagnosis. They have specific education and training that our social networks often do not have. And if you still feel uncertain or anxious, I want to normalize that many YAs continue to have questions even after getting a “good” prognosis. It’s completely okay to ask more questions, request clarification, or even seek a second opinion if that would help you feel more grounded in your care. There’s no wrong way to approach this; the most important thing is that you feel informed, supported, and able to trust the plan moving forward.

I also want to acknowledge how painful it can be when friends start treating you differently after a diagnosis. I have heard so many YA’s that navigating relationships with a cancer diagnosis can feel really hard. Some people experience ghosting, and sometimes other people become overly fragile around us. Sometimes they catastrophize. Sometimes they unintentionally make us carry their fear in addition to our own. It’s exhausting and difficult to navigate when you may already be having a plethora of your own feelings! 

You mentioned that your friends treat you like you’re already on your deathbed, and I wonder what specifically they’re doing that lands that way for you. Sometimes it can help to get really clear with ourselves about what feels supportive versus what feels overwhelming, intrusive, or discouraging. If people are talking to you like you’re fragile, planning “last experiences,” becoming a ‘grief tourist’, or acting like hope is unrealistic, it’s okay to push back on that. You are allowed to advocate for yourself here, and sometimes we have to advocate with our friends who honestly just may have no idea. Not that it excuses the pain that comes with this experience. 

It’s completely okay to say things like: “I know you care about me, but I really need people to follow my lead and trust my medical team right now.”

Or even: “I want support, but I don’t want to feel like I’m being mourned while I’m actively living my life.”

Now for your other two questions about how to live inside of survivorship or make plans with fear of recurrence. Cancer has a way of making people feel like they need certainty before they can fully live, but the truth is, none of us is guaranteed certainty. Cancer just forces that reality into the spotlight earlier and louder than most people experience. Fear of recurrence is absolutely real, and survivorship can be emotionally complicated in ways people don’t always talk about. A lot of survivors describe feeling pressure to “go back to normal” while internally carrying a completely different relationship with uncertainty, time, and their body. Learning how to live again after cancer is rarely one big breakthrough moment. Usually, it’s something that happens slowly over time. It’s rebuilding trust in yourself, your body, your future, and your ability to hold uncertainty without letting it consume your whole life.

I wish I had a cleaner roadmap for this part, but honestly, a lot of it comes down to practice. Practice making plans anyway. Practice letting yourself imagine a future anyway. Practice tolerating uncertainty without handing it complete control over your life. And over time, most people do find that it gets easier to carry. Not because the uncertainty disappears, but because they become more confident in their ability to live alongside it. For more tips on this, check out a question I answered a while back: Got Big Questions. 

I also really encourage you to stay connected to people who understand the emotional landscape of young adult cancer, specifically. YA spaces can be incredibly healing because you don’t have to explain the strange mix of hope, fear, grief, humor, and existential whiplash that can come with all of this. Therapy can help too, especially with someone who understands oncology or chronic illness experiences. 

Most importantly, I want you to know this: having moments of fear does not mean your hope is misplaced. You can trust your medical team, acknowledge uncertainty, and still build a future you’re excited about. Those things are allowed to co-exist.

Sending you a hug as you navigate this next chapter,
Perrie

Ask Perrie is Cactus Cancer Society’s advice column for the questions that young adult cancer doesn’t come with instructions for. Community members submit anonymous questions, and Perrie offers thoughtful guidance, perspective, and practical ideas for navigating life during and after cancer.

Awkward Auntie Question No. 24

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: I’m a year and a half post-chemo, and finally got a diagnosis of vulvar atrophy and hormone issues from chemo. It just seems to be so uncommon, especially for my age, that I couldn’t get an explanation for my symptoms. I worried now that I’ll never get to have a normal sex life. Hormonal replacement seems to have many side effects and complications with my other conditions. Are there things that can be done to help? There’s just so little information out there for my age, and nobody seems to understand. 

Answer: The usual advice for a dry vulva and/or vagina is to use moisturizers for daily comfort and lubricants for sexual touch and penetration. But these are ‘band-aid’ solutions. The only thing that will really help is estrogen, either systemic or local. I don’t know what your other conditions are, so I cannot speak to that. It is really awful that no one in your oncology team has provided you with guidance or referred you to a GYN who can help. It sometimes takes a while to find hormonal treatment that works for the individual, but there are many options available! Keep advocating for yourself! 



You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Awkward Auntie Question No. 23

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: My question is that my penis shrunk from the steroids they gave me for chemo as a pre med and I wanted to know if there’s a way to make go back to its normal size and my doctor told me that if I have kids in the future that they have high chances of developing the same type of cancer as mine so I am not going to have kids I am going to adopt but I want to get checked but what can I do to get my penis back to its normal size can I try pump or penis enlargement pills I feel very shy in that area thank you for answering Mt questions  and thank you so much for your service 

Answer: Penis size is important to many/most men, even though for women, it tends not to be that important! You can certainly try a penis pump. Using one without the constriction band and with gentle suction every day or every other day may help to increase the size, but there are no guarantees. Also, if you are overweight, the fat pad at the front of your pelvic bone often makes the penis look shorter. Losing weight (if you need to) can increase the length of the penis. Penis enlargement pills are not a good idea, full stop. You should talk to your primary care provider about checking your testosterone levels to see if a testosterone supplement (prescription only, not off the shelf!) may be of some use.

You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Awkward Auntie Question No. 22

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: Dear Dr. Anne Katz, I am 42 years old and going through my second bout of cancer. The first occurrence was four years ago. Each time I’ve had brain surgery (cancer was in my dura mater) and radiation. (It sounds very dramatic, but my prognosis is actually very good–it’s not an aggressive cancer, and my doctors at MD Anderson consider it treatable.) The first bout coincided with the end of a five-year relationship. I’ve been with a new partner, who has been absolutely wonderful in many ways. He helps me with everything. He’s adoring and kind. I met him when I needed so much help. But we’ve never had much of a connection sexually. A little bit at first, but since my cancer came back, sex has stopped altogether. It’s been about eight months. We’ve fought about it, I think I brought it up the wrong way, and maybe it’s poisoned things. He has problems with impotency and seems completely uninterested in sex. (He is 15 years older than me.)  I also have lost all interest, maybe this is normal when you are going through cancer? I feel so confused about our relationship. There are so many societal messages that a good relationship must include a healthy sex life. I’ve never experienced any problems with sex in a relationship until now, but I also had never gone through cancer before. I feel safe and, in many ways, happy with him. But I’m going to be 43 soon, and the question nags at me — should I end our relationship because we don’t have a sex life? I feel like I’m sitting on a fence and time is running out. I love him, but should I give up on that dimension of my life? How important is sex really? Am I settling? Thank you for reading. 

Answer: We place so much emphasis on sex – sex sells everything from candy to cars! – and there are many couples who are happy and have a good relationship without sex. Some degree of erectile dysfunction is common in men your partner’s age, and his lack of interest in sex may have nothing to do with you, but rather is in reaction to his erectile problems. It is also possible that if the two of you lack sexual chemistry, that is all it is (that may seem like a lot), but that is not uncommon either. Your cancer, however, complicates matters; did you stay in the relationship despite the lack of sexual chemistry because you were not sure that you would find another partner? It is also completely normal to not want to have sex at all stages of the cancer experience, and in my practice, I mostly see couples or individuals who become interested again only after they have gone through treatment and (the long) recovery period and are well into the survivorship phase. 

Are you settling? Maybe… but if you weigh the pros and cons of this relationship, that might be okay for both of you.

You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Awkward Auntie Question No. 21

Ever had a question about relationships or sex that you just can’t ask your oncology care provider? Ever felt too shy to ask a nurse or doctor a question, but really needed the answer? Now you can ask those questions and get answers from Dr. Anne Katz, the Awkward Auntie! We’re back for another round of Awkward Auntie. Read on for some more recent Q&As! 

Question: I have absolutely no desire to have sex. What can I do to fix it?

Answer: You have been through a LOT and have the scars to prove it! The lack of desire may be related to your altered body image (justified), the side effects of the chemo and radiation that have resulted in pain with sexual touch or penetration. And then there is the colostomy…..  We know that for some women, a total hysterectomy alters the occurrence or sensations of orgasms, and of course, you likely have a LOT of internal scarring from the removal of lymph nodes and pelvic floor muscle. 

But you know all this…

What can you do to fix it? Firstly, spontaneous desire (as we see in movies and on TV) usually only happens at the start of a relationship, and if you are waiting for desire to kick in (when you are in an established relationship), it may not. Why? Because in established relationships, women are more likely to experience RESPONSIVE desire. Responsive desire happens when you become aroused by a partner’s touch (even non sexual touch), or their words or actions (nuzzling your neck, for example). So if you wait around for spontaneous desire, you may be waiting for a long time….

Mindfulness-based meditation and a mindfulness practice are evidence-based interventions that have been shown to increase desire. Please read the book by Dr. Lori Brotto (Better Sex Through Mindfulness) – she explains this beautifully, and her suggestions will help! 

You can learn more about this great program, find the answers to past questions, and submit a question of your own by going here!

More about the Awkward Auntie program:

Dr. Anne Katz, also known as the Awkward Auntie, is a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer – and all the things that happen to your body, relationships, and sex during and after treatment.  She will answer any and all questions that you send to AwkwardAuntie@lacunaloft.org or submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age, and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted on our Awkward Auntie page. 

Ask Perrie: Sick and Tired of Being Sick and Tired

Dear Perrie,

When you have chronic cancer and become sick and tired of being sick and tired, how do you get that spark back? A sense of hope?

Dear Sick and Tired of Being Sick and Tired,

There is a kind of exhaustion that comes from living in something that never resolves. It’s not just physical. It’s the repetition of it all and the mental labor that comes along with it. Managing chronic cancer is draining, and it makes sense that your spark feels harder to access right now.


Part of finding hope again is allowing your experience to be exactly what it is. There is nothing wrong with feeling worn down, tired, or even depressed in response to what you are living through. I’d actually find it a bit odd if those feelings didn’t show up from time to time. So first things first, I’d encourage you to make space for them. Yes, I am asking you to feel your feelings. Sometimes our emotions are like messengers trying to get our attention. It makes me curious what yours might be pointing to. Often when we give our bodies and minds space in this way, we learn something about what we need, whether that’s boundaries, tiny goals, more rest, or more support.


If “feeling the feelings” is too much, it can also be useful to orient toward what is livable right now. That might look like noticing even a small amount of ease, something that piques your interest, or where your attention lingers a little longer than expected. It might be a conversation that feels grounding, a nurse who smiled at you, a creative practice, or a stretch of time that feels even slightly less heavy. Noticing these moments helps your nervous system remember there are good moments too. You see, when our threat system is in overdrive, your brain often looks for information that confirms our thoughts first. By practicing making space for noticing neutral or positive moments, over time, it can make it easier for your brain to recognize what supports a sense of hope, connection, or even just a little bit of relief.


What I have seen, and what many people living with chronic illness come to over time, is that the spark does come back, but often in a different form. In cancer spaces, people sometimes talk about life before cancer and after, like there is a line in the sand. That shift is real for some. Your identity, your priorities, and your relationship to your body may all look different now. At the same time, you are not only your illness. I’d invite you to get curious about the shifts that have happened. What used to give you a sense of hope, wonder, or enjoyment? What did that look like earlier in your life? And now, as you are today, is there anything from that list you might be open to revisiting? Or is there something new that this version of you might be drawn to?


Something I often recommend, and have practiced myself, is intentionally scheduling joy. When you are living inside something this heavy, joy does not always show up on its own. It sometimes needs to be invited in on purpose. That does not mean forcing happiness. It means making space for moments that remind you that your life is more than appointments and symptoms. This can be small. Making your favorite drink, stepping outside, texting someone who feels easy to talk to.


If you want more support around this, you might check out the book How to Be Sick, which speaks directly to building a life within ongoing illness, or When Things Fall Apart by Pema Chodron, which discusses how one continues to live even when life feels like it’s falling apart. You might also consider letting your care team know how you have been feeling. You deserve support that meets you where you are at while you navigate this. A social worker, nurse, or doctor you trust can help connect you with additional support (like a well-qualified therapist or support group) so you are not holding this alone. And one last reminder: The spark you are looking for is not gone. It is likely changing shape, asking for different conditions, and moving at a pace that matches what you are carrying.


Sending you soft landings,
Perrie

Ask Perrie is Cactus Cancer Society’s advice column for the questions that young adult cancer doesn’t come with instructions for. Community members submit anonymous questions, and Perrie offers thoughtful guidance, perspective, and practical ideas for navigating life during and after cancer.