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Empowering the AYA Osteosarcoma Community

At Cactus Cancer Society, we know that every young adult facing cancer has a story that matters. That’s why we’re excited to share an opportunity to make a direct impact on research through Count Me In’s Osteosarcoma Project.

Osteosarcoma is a rare and aggressive bone cancer that primarily affects adolescents and young adults (AYAs). Despite medical advancements, progress in osteosarcoma research has been slow, partly due to the limited availability of patient data. Count Me In is working to change that by empowering patients and families to contribute their experiences, medical information, and samples to drive scientific discoveries.

By participating in the Osteosarcoma Project, individuals can help researchers gain a deeper understanding of osteosarcoma, uncover potential new treatments, and work toward better outcomes for the AYA community. Every contribution, whether it’s sharing medical history, providing a saliva sample, or answering short surveys, helps build a resource that fuels critical discoveries.

How to Get Involved:

If you or a loved one has been diagnosed with osteosarcoma, joining the OS Project is simple and completely online:

  • Sign up online – Provide basic information and consent to participate at OSProject.org.
  • Share your story – Help researchers understand the patient experience by answering short surveys.
  • Submit medical records – With your permission, the Count Me In team will collect relevant medical history and treatment details.
  • Provide a saliva sample – A free kit is mailed to you, and your sample helps researchers study the genetics of OS.
  • Optional: Share tumor or blood samples – If available, existing samples from previous procedures can contribute valuable data.

At Cactus Cancer Society, we believe in the power of community and the strength of young adults impacted by cancer. By joining the OS Project, you’re not just sharing your story, you’re helping shape the future of osteosarcoma research.

Learn more about Count Me In and sign up today at OSProject.org.