Keep Going Anyway

Is it just me, or does the world feel heavy lately?

The news scrolls by in an endless stream of uncertainty–conflict, loss, change.  In moments of uncertainty, it’s easy to feel unmoored, like we’re all holding our breath, waiting for the next thing to shift beneath our feet.

But in the midst of uncertainty, here’s one thing I’ve come to believe deeply and personally: art always prevails.

Art doesn’t just survive during hardship–it rises up to meet it.  It helps us give shape to the things we don’t yet have words for.  It allows us to express our pain, to explore our joy, to reconnect with who we are.  Picasso painted Guernica in the wake of the devastation and brutality of war.  Maya Angelou wrote Still I Rise from the depths of oppression.  Time and time again, creativity becomes our compass when we feel lost and uncertain.

My craft of choice is embroidery.  I find the repetitive action of making little stitches to be meditative and the end result to be satisfying.  But with every project I’ve ever worked on, there’s an inevitable moment in the middle when I absolutely HATE it.  I think, “Oh no!  This looks horrible!  What have I done?”

It’s at this point that I have a choice to make – Do I quit?  Do I pull out all the stitches and start over?  Do I throw the whole thing away?

Or…

Do I keep going anyway?  Do I decide to embrace the imperfection and press on in hope that what I’m doing will work itself out in the end?

I always do, and I always love the end result.

As a cancer survivor, I know firsthand what it’s like to sit in uncertainty – to feel overwhelmed, afraid, and disconnected from my own story.  I also know how powerful it is to create something in the midst of that.  The creative process itself is steeped in uncertainty.  Mistakes become part of the masterpiece.  We hit roadblocks and invent new ways forward.  We often don’t know what we’re creating until it’s done–and somehow, that’s where the magic lies.

Engaging in creativity is willingly choosing to embrace uncertainty.  When we talk about resilience, we often imagine it as pushing through the pain, standing tall, staying strong.  But sometimes, resilience looks like something much quieter.

Sometimes it looks like picking up a paintbrush when everything feels uncertain.

Or writing a poem when you don’t know what to say.

Or showing up to a virtual workshop just to know you’re not alone.

Each time I pick up my needle and thread and decide to simply keep going despite the uncertainty of what the end result will be, I am learning to become more resilient.  Engaging in the creative process teaches us to keep moving forward even in the midst of uncertainty – whether it’s uncertainty about what a mess of fabric and threads will eventually become, or whether it’s uncertainty about something much bigger, like the results of a PET scan, whether or not my treatment will work, if my fertility has been impacted, or if my cancer might return. 

That’s what we see in our creative programs at Cactus Cancer Society.  Young adults facing cancer step into the unknown every single day in our workshops.  And when they make art, they’re not just expressing themselves.  They’re learning to befriend uncertainty, to create in spite of fear, to keep going, one messy brush stroke at a time.

Sure, learning a new form of art is fun!

Sure, it’s exciting to get a box of art supplies in the mail!

Sure, completing a project provides a sense of accomplishment!

But it’s about so much more than that.  Our programs aren’t just “craft nights.”  They’re spaces of transformation, connection, and healing.

In the midst of something as earth-shattering as a cancer diagnosis, the value of resilience cannot be understated.

Our fiscal year is coming to a close on June 30th and we are aiming to raise $5,000 to support our creative programming.  This amount will allow us to provide art supply boxes to an additional 100 young adult cancer patients and survivors in the next fiscal year.

So let me ask you a simple question – will you join us?

Will you help us continue this important work of strengthening resilience in each young adult facing cancer who joins our creative programs?

We’re Hiring!

Did you know that Cactus Cancer Society offers over 20 programs helping reduce feelings of anxiety, depression, psychological distress, and loneliness, and serving thousands of young adults facing cancer every year?  And now we’re looking for someone to join our programs team!

Interested in joining our team and positively impacting young adults facing cancer? Have some program planning experience? We’re hiring a Senior Program Coordinator and we’d love for you to apply!

We’re looking for someone with a passion for program planning who wants to play a central role in bringing life-changing creative coping programs to the young adult cancer community. We are a fully remote team and are excited to bring someone new on board!

Is it you?  Click below to learn more and apply today!

Empowering the AYA Osteosarcoma Community

At Cactus Cancer Society, we know that every young adult facing cancer has a story that matters. That’s why we’re excited to share an opportunity to make a direct impact on research through Count Me In’s Osteosarcoma Project.

Osteosarcoma is a rare and aggressive bone cancer that primarily affects adolescents and young adults (AYAs). Despite medical advancements, progress in osteosarcoma research has been slow, partly due to the limited availability of patient data. Count Me In is working to change that by empowering patients and families to contribute their experiences, medical information, and samples to drive scientific discoveries.

By participating in the Osteosarcoma Project, individuals can help researchers gain a deeper understanding of osteosarcoma, uncover potential new treatments, and work toward better outcomes for the AYA community. Every contribution, whether it’s sharing medical history, providing a saliva sample, or answering short surveys, helps build a resource that fuels critical discoveries.

How to Get Involved:

If you or a loved one has been diagnosed with osteosarcoma, joining the OS Project is simple and completely online:

  • Sign up online – Provide basic information and consent to participate at OSProject.org.
  • Share your story – Help researchers understand the patient experience by answering short surveys.
  • Submit medical records – With your permission, the Count Me In team will collect relevant medical history and treatment details.
  • Provide a saliva sample – A free kit is mailed to you, and your sample helps researchers study the genetics of OS.
  • Optional: Share tumor or blood samples – If available, existing samples from previous procedures can contribute valuable data.

At Cactus Cancer Society, we believe in the power of community and the strength of young adults impacted by cancer. By joining the OS Project, you’re not just sharing your story, you’re helping shape the future of osteosarcoma research.

Learn more about Count Me In and sign up today at OSProject.org.

Celebrate A Decade of Impact!

Can you believe it?  2025 marks 10 incredible years of reducing isolation among young adults facing cancer!  Together, we’ve built a vibrant, resilient, and creative community – and now it’s time to celebrate everything we’ve achieved.

Shall I set the scene? 

On April 5, 2025, we’ll gather in beautiful Berkeley, California, to raise our sparkling glasses and honor a decade of impact on the young adult cancer community.  This unforgettable evening will feature Barcelona-inspired tapas, signature refreshments, and an exquisite gallery of auctionable art created by our talented community members.  The night will also feature an inspiring award ceremony to recognize exceptional advocates who have lived out our mission

But that’s not all!  Start the day with us at a morning Art Workshop where we will experience the magic of creative coping and community in person (!!!). Over coffee and treats, we’ll come together to create, connect, and celebrate the power of art in healing.

Over the past 10 years, Cactus Cancer Society’s virtual creative coping programs have brought hope and connection to more than 14,500 young adults as they navigate the harsh landscape of cancer. This remarkable milestone –and the transformative power of community– are a testament to the unwavering support of our cherished network mission partners, program participants, and dedicated advocates. Cactus Cancer Society, at its core, is a creative collaboration, and every bit of this success reflects what you, our community, has made possible. 

So, will you join us?  Dust off your California cocktail attire that makes you feel fabulous because we are wine-ing, dining, and celebrating this anniversary in style. 

Don’t miss this rare opportunity to gather in person with our vibrant young adult cancer community and the allies in our mission who have made this decade of impact possible. Tickets are available at the early bird price until February 1st – secure yours today and mark your calendar for an event that promises to inspire, uplift, and celebrate or shared impact.

Together, let’s toast to 10 years of resilience, creativity, and connection–and to the incredible future ahead!

How do stress, conflict, and isolation impact cancer outcomes?

Here at Cactus Cancer Society, we believe in the power of research for improving the lives of those who may be diagnosed with cancer in the future.  We’re always interested in amplifying the voices and experiences of young adults facing cancer, and making sure this population is represented in research. Check out the research opportunity below to see how you can use your story to help others!

The Young Adult Cancer Survivor Study

The purpose of this study is to understand more about how the world that teen and young adult lymphoma survivors live in affects the outcomes of their cancer treatment. We call this field of research social genomics, and it takes a close look at why and how different factors like social stress, conflict, and isolation can impact cancer diagnoses and outcomes.

This study for young adult cancer survivors is being run by a fellow young adult cancer survivor.  For more info, watch the research team’s informational YouTube video at https://youtu.be/xDlnWKvtkuU.

Am I Eligible to Participate?

You are eligible to participate if you:

  • Were diagnosed with Hodgkin or non-Hodgkin lymphoma between the ages of 15 and 39
  • Are currently between the ages of 18 and 39
  • Completed treatment within the past three years

What Will I Be Asked to Do?

You’ll be asked to complete an online survey every six months for two years and provide a blood sample every six months for two years.

Will I Be Compensated?

Participants will receive a $20 gift card each time they complete a survey and provide a blood sample (5 times for a total of $100).

How Do I Sign Up?

Learn more at https://youtu.be/xDlnWKvtkuU.  To sign up to participate, visit https://redcapproduction.umms.med.umich.edu/surveys/?s=ATKW4KFCEYHL9YR3

Happy National Caregivers Month!

November is National Caregiver Month, and Cactus Cancer Society wants to honor and celebrate all of the incredible caregivers in our community! There’s no way to properly thank you for everything you do, but we want to highlight you and offer a token of appreciation for our thanks! In honor of these amazing caregivers, we have a few extra things going on this month!

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Join The Greenhouse!

Members of the Greenhouse are a generous and caring group of people advocating for a world where all young adults facing cancer get the support and community they need. Will you join us?

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