Here at Cactus Cancer Society, we’re always interested in amplifying the voices and experiences of young adults facing cancer, and making sure this population is represented in research. Check out the research opportunities below to see how you can use your story to help others!
CanRestoreFunction: Cancer-Related Fatigue Management
Study Description
Many individuals with cancer who are receiving or who have received chemotherapy and/or radiation develop fatigue that prevents them from doing daily activities that are important to them. This research seeks to discover strategies to manage and lessen this feeling of fatigue.
Am I Eligible to Participate?
You are eligible for this study if:
- You are 18 or older
- You are receiving or have received chemotherapy and/or radiation therapy
- You have been diagnosed with cancer within the last 5 years
- You are experiencing fatigue
- You do not have Stage 4 (cancer that has spread)
What Will I Be Asked to Do?
You will be asked to:
- Complete an online screen followed by three online surveys
- Participate in 10 online weekly visits using Zoom (each visit 20-30 minutes)
- Complete an individualized exercise program 3 times a week in the comfort of your home
- Complete 4 interactive online educational modules
Will I Be Compensated?
Participants will receive an individualized exercise program. At the end of the study, you will be compensated for your time with up to $80 in gift cards of your choice.
How Do I Sign Up?
To sign up to participate, visit https://redcap.link/UCUDCRF
If you have any questions, please contact Anne Fleischer at CaRehabResearch@gmail.com
The BurnAlong Study: A Virtual Peer-Based Physical Activity Network for Young Adult Cancer Survivors
Study Description
We are currently conducting a study to understand Young Adult (ages 18-25) cancer survivors’ experiences with a virtual app-based physical activity program, BurnAlong. Participants can be new to exercise as this program is individualized and adaptive.
Our goal is to ultimately develop quality physical activity programs for Young Adult cancer survivors that promote long-term physical, psychological, and social health.
Am I Eligible to Participate?
This study is open to:
- Cancer (all types) diagnosis between the ages of 15-25
- Between the ages of 18-25 during study participation
- At least 3 months post-active treatment completion
- Access to and ability to use a computer, tablet, or phone device with internet access
- Ability to understand and read English
- Answers “no” to all questions on the Physical Activity Readiness Questionnaire
- Not currently meeting physical activity guidelines per leisure-time physical activity participation questionnaire
- Written and informed consent obtained from participant and ability for participant to comply with the requirements of the study
- Not currently pregnant
- No planned active treatment within 3 months of the study start date
- No hearing loss or vision impairment that would preclude the participant from accessing and using the app (use of hearing aids or visual aids is acceptable) based on self-report
What Will I Be Asked to Do?
Young Adult cancer survivors will be given access to BurnAlong, a virtual physical activity platform, and asked to engage in 3 physical activity sessions with a friend or family member a week for three months.
They will also have access to a private social network group for adolescent and Young Adult cancer survivors and will be asked to post at least 2 times per week for three months.
Participants will be asked to participate in a monthly group exercise session led by our team’s Exercise Physiologist along with other study participants.
Participants will be mailed a Fitbit and asked to wear it and sync its data over the course of the three month intervention.
Will I Be Compensated?
Participants will be given a Fitbit device.
How Do I Sign Up?
Email the study coordinator, Jessica Capaldi at Jessica.Capaldi@cshs.org or the principal investigator, Dr. Celina Shirazipour at Celina.Shirazipour@cshs.org
