Happy 2 Years Lacuna Loft!

Lacuna Loft

Wow!  I can’t believe that 2 years have gone by!  So much has changed since we launched Lacuna Loft on March 3, 2014 and since our birthday one year ago.

Lacuna Loft is hitting its stride and settling into its life as a dynamic nonprofit.  I am so proud of what Lacuna Loft has grown into.  I am so excited by the programs that we have going and the programs that are arriving soon.  It has been 2 years and 6 months since I left my life as an aerospace engineer to dream and scheme on how I could help make my own life better as well as the lives of others going through serious illness.  What an incredible ride it has been so far.

Given how far we have come and how far we are going, the Lacuna Loft team would like to request that you fill out our super easy-peasy survey below.  It will provide us with information and feedback on how better to serve you; about what you’re interested in and what you could do without.  Feel free to fill in as much or as few details in that last question as you’d like.

Lacuna Loft is here for you and we are #StrongerTogether.

P.S.  Happy 1 Year Lacuna Loft! & Launch Day!

Mal-2

Research Study For Canadian Cancer Survivors

Canadian cancer survivors

Are you a Canadian cancer survivor? A team at Dalhousie University in Halifax, Nova Scotia is researching ‘return to work’ in cancer survivors in Canada.  Taking part in research is a valuable use of time…it helps further our understanding of how cancer affects lives and how we can all work together to make improvements.

If you meet the criteria listed below and are interested in taking part in the return to work study, contact Emily Drake at 902.292.3859 or at emily.drake@dal.ca for more information.

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A Young Adult Cancer & Chronic Illness Writing Group!

writing group

Lacuna Loft is incredibly excited to introduce you to a new program that is starting here in mid-March called Unspoken Ink! Unspoken Ink is a creative writing group, designed to help address issues that transport us from initial diagnosis into the new normal and survivorship. The group will consist of 8-10 people, and will meet over 10 weeks for 2 hours each week over google hangout video chat.

If you’re interested in joining us, read more below and fill out the form!  Our Spring Session is forming now!

For the Spring Session of Unspoken Ink, we will be forming a group of 8-10 survivors. Caregiver groups will start slightly later in the year. If you are not able to attend the Spring Session for any reason (you’re a caregiver, the group was full already, the time didn’t work for your availability, etc.) please fill out the form anyway and we’ll put you on the list for future writing groups!


Welcome to the Unspoken Ink writing group! Jen and Mallory are so excited that you are considering joining us!

This group is designed to take you on a journey through your cancer or chronic illness diagnosis and into your survivorship with a small group of your young adult cancer/illness survivor peers. Each 10-week program consists of a weekly writing session attended via google video hangout. We will get to know one another in an intimate, 8-10 person setting and address issues that transport us from initial diagnosis into the new normal and survivorship.

The Unspoken Ink writing group uses a creative writing method (Amherst Writing and Artists (AWA) Method) wherein the facilitator provides a writing prompt and you can use that prompt in any way you’d like to create a story over a set amount of time. Once we’ve finished our writing (yes, the facilitator writes too!), everyone is given the opportunity to read their writing out loud. Hearing your own story and hearing someone else’s teaches us all so much about our experiences and our stories. Once the piece is read, we reflect on the writing – what did we like, what stood out, what do we remember. Everything is considered fiction so we do not respond to the writer as a support group may, but keep the focus on the writing.

Sometimes the prompts are about cancer/illness, sometimes indirectly related to cancer/illness, and sometimes not about cancer/illness at all. Above all, the writing program emphasizes that we are more than a diagnosis.

Our Spring writing group is forming soon!

Some logistics:
– The writing group meets for 2 hours each week, for a period of 10 weeks. A commitment to attend each week is important to group continuity and in creating a safe space. Please be on time. The group will begin in mid-March with a TBD meeting time.
– Each participant will receive a name@LacunaLoft-writinggroup.org email address to use when attending each writing group session. At this email address, you will receive a weekly invitation to a google video hangout where the writing group session will take place. These email addresses will help preserve individual privacy if desired and will make meeting as a group via video hangout easier.
– Following each weekly session, you may decide to submit your writing to Mallory (mallory@lacunaloft.org) for publication on LacunaLoft.org in their Young Adult Voices program section. This is not mandatory!

Looking For More Young Adult Voices!

writing with Lacuna Loft

Over the past few weeks, Lacuna Loft has welcomed two new people to our Young Adult Voices program!  This program offers new articles or videos, 5 days a week, to young adult cancer or chronic illness patients, survivors, and caregivers.  We hope to end isolation by showing each and every young adult facing these dramatic health concerns they are not alone…there are other people out there, just like them, who get it.

Lacuna Loft is expanding our horizons and looking for even more contributors to add to our Young Adult Voices program!  Each young adult who writes on Lacuna Loft adds a special perspective to the young adult cancer and chronic illness spectrum.  Your stories have the ability to help another young adult going through what you are.  These young adults understand what it is like to walk in your shoes and are willing to share pieces of their lives and experiences.

If you are a young adult cancer or chronic illness patient, survivor, or caregiver, consider joining us here and writing with Lacuna Loft.  You can share your voice.  You can share your story.  You can make a difference.  We are #StrongerTogether.

Email info@lacunaloft.org if you are interested.

Last Chance This Year To Support Lacuna Loft!

donate to Lacuna Loft

Lacuna Loft provides resources for your good days and your bad days, right at your fingertips.  We need your help to develop these programs and to provide them at no charge to young adult cancer and chronic illness patients, survivors, and caregivers.  Before the end of the year, donate to Lacuna Loft!

[button colour=”accent” type=”dropshadow” size=”large” link=”https://cactuscancer.wpengine.com/donate/” target=”_blank”]Donate Today![/button]

[list type=”like”]
[list_item]$20 helps a young adult survivor or caregiver participate in our book club[/list_item]
[list_item]$50 allows survivors + caregivers to share stories, in our Young Adult Voices program[/list_item]
[list_item]$250 funds a wellness workshop for 10 survivors and caregivers[/list_item]
[list_item]$500 connects 50 new survivors and caregivers to Lacuna Loft’s wellness resources[/list_item]
[/list]

Make a difference in the lives of young adults impact by cancer and chronic illness today!

Lacuna Loft is an entirely community funded charity that provides all programs at no charge to young adults in need!  Your gift is tax deductible to the full extent of IRS rules & regulations.

Have A Happy Holidays + New Year!

Lacuna Loft is signing off for the rest of the year.  While we value the need for quality resources for young adults facing cancer and chronic illness, we also know that taking some time away to recharge is good for the soul.

We are looking forward to a wonderful start to 2016 and can’t wait to get to it!  Changes are underway here at Lacuna Loft and the next 6-8 months should bring many fabulous, new things!

In the mean time, check out some of our great archives from the Young Adult Voices program!

Are you a patient?

Are you in active treatment?

Are you a survivor?

Are you a previvor?

Do you have a chronic illness?

Are you a caregiver?

Are you a family or friend?

Are you a cancer mom?

Are you interested in joining a book club?

Are you looking into learning to journal?

Are you spending some of your time off on DIY projects or cooking?

Are you exploring healthy eating?

Wanting to know more about particular diagnoses?

Interested in other young adult cancer organizations?

Are you searching for stories dealing with some of the elephants in the room? …infertility….death and dyingpoopinghealth insurance.

Are you looking for fun weekend links?

If you are looking for something and you can’t find it, send us an email at info@lacunaloft.org.

Until the New Year, Lacuna Lofties!  We’ll see you soon!

#GivingTuesday

#GivingTuesday

Today is #GivingTuesday!  Today we all come together and offer support to our favorite charities as we celebrate giving and generosity.

[button colour=”accent” type=”dropshadow” size=”large” link=”https://cactuscancer.wpengine.com/donate/” target=”_blank”]Donate Today![/button]

This year, consider giving to Lacuna Loft.  Our programs are growing and expanding and each one helps young adults facing cancer or chronic illness the tools and resources to adapt to their difficult circumstances.  Cancer resource centers, in their brick and mortar locations have helped the cancer survivor and caregiver community for years.  They are an important and integral part of the in-person cancer care community.  But they are geographically limited, further isolating those living in smaller communities, and they often lack programs appropriate for the young adult population.  Lacuna Loft seeks to offer these psychosocial resources that have been proven essential to improving quality of care and quality of life, in an age-appropriate package for young adults.

There is so much in store for the future of Lacuna Loft.  In the next 6-8 months, your support will foster online wellness workshops and support groups.  These online programs will connect young adults facing drastic health concerns.  While most of their peer group hasn’t faced anything like cancer or chronic illness, the young adults they meet and interact with through Lacuna Loft will help to end their isolation and improve quality of life.

[button colour=”accent” type=”dropshadow” size=”large” link=”https://cactuscancer.wpengine.com/donate/” target=”_blank”]Donate Today![/button]

No more brick and mortar.  With your help, here comes Lacuna Loft, because we are #StrongerTogether.

Lacuna Loft is an entirely community funded charity that provides all programs at no charge to young adults in need!  Your gift is tax deductible to the full extent of IRS rules & regulations.

End Of Life Program Through Young Survival Coalition

end of life

The Young Survival Coalition along with Kate Adelstein of the University of Virginia are hosting a three part “End of Life” series.  The first part of the series is being live streamed on Thursday, December 10th at 8 pm EST/7 pm CST/ 5 pm PST and will be one hour long.  If you want to attend the event, you must register here.  Though Young Survival Coalition serves the young breast cancer population, you need not be a breast cancer survivor to attend the series!

While talking about and thinking about end of life can seem like a “morbid” or “negative” experience, let’s take a second to consider what happens when we do not have these conversations.  If someone you are helping care for dies…

What type of structure will the funeral or memorial service have?
How would they like their body to be dealt with?
How would they like their belongings and/or wealth to be distributed?
Who should be included in the funeral or memorial service?

These logistical questions are hard to make when dealing with grief and we want to make these decisions while being well informed on the desires of the person being celebrated.  Logistical conversations are not the only ones to have surrounding end of life.  Where can you go to “find” that person once they have died?  What might they want to have you remember once they’ve died?  My mother told me specifically that I could talk to her anywhere I might be.  This thought has remained a calming one for me throughout the years since her passing.  That specific conversation with her happened years before her cancer diagnosis.  Not being close to the end of your life does not mean that you can ignore your end of life discussions.

Part One of the series, “The Research & Benefit of Introducing Palliative Care Early in the Cancer Journey,” is supported by “key findings from an Institute of Medicine report that those introduced to palliative care may live longer than those who do not receive this kind of support.”

Will you attend the series?  Have you discussed end of life preferences with your family or in a formal document?

Supporting Lacuna Loft’s Programs

Two weeks ago, Lacuna Loft put out its first ever call for donations.  Being a completely community funded entity means that we can provide our resources and services to young adults in need completely free of charge, and that we need you to do it.

In the last two weeks we have raised a whopping $2400!  Way to go!!!  Thank you so much to everyone who has donated so far!

[button colour=”accent” type=”dropshadow” size=”large” link=”https://cactuscancer.wpengine.com/donate/” target=”_blank”]Donate Today![/button]

At a time when their peers are advancing their education, careers, and families, young adult patients and survivors face time away from school and work to facilitate treatment and recovery.  They often feel an intense sense of loss of their once busy lifestyles, experience social isolation from their peers, and are overwhelmed by the daunting financial burdens they face.

Imagine feeling alone during one of the most important and stressful points in your life because of serious illness.

Lacuna Loft needs your help to empower young adult cancer and chronic illness patients, survivors, and caregivers.  Our programs provide psychosocial and lifestyle support that are age-appropriate and that address the challenges unique to young adults facing dramatic health concerns.  Our flagship program is an online way of story telling, helping end isolation and provide an outlet for these young adults to tell their truths.  Next comes online wellness programs and workshops.

But we can’t get there without you.

Your donation goes straight to helping these young adults affected by cancer or long term illness.  Give a little or give a lot to help these young adults adapt their once bustling lives to fit their new challenges and learn to live vibrantly in a new normal.

No more brick and mortar.  With your help, here comes Lacuna Loft, because we are #StrongerTogether.

[button colour=”accent” type=”dropshadow” size=”large” link=”https://cactuscancer.wpengine.com/donate/” target=”_blank”]Donate Today![/button]

Lacuna Loft is an entirely community funded charity that provides all programs at no charge to young adults in need!  Your gift is tax deductible to the full extent of IRS rules & regulations.