Case Files: Creative Coping Through Crochet

In this new blog series, Case Files: Creative Coping, we are highlighting the creative coping practices our community members enjoy outside of our programs. If you have a hobby or practice that you’d like to tell us about, please email programs@cactuscancer.org.

Today we’ll be hearing from Valarie, one of our amazing Cactus Cancer Society community members, and one of her many creative coping practices. Read on to learn more about how she got hooked on photography, its relationship to her cancer experience, and how she’s found community through her work!

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Ask Perrie: Carrying So Much

Dear Perrie,

My boyfriend, 26 years old, had a stool test, and they told him he has colon cancer. This was in April 2026. He has been having blood in his stool since November 2025. We had problems obtaining Medicaid, and his colonoscopy isn’t for another 2 weeks. We still don’t know the extent, and it’s killing me, but he said he does not feel well. He hasn’t told anyone. It’s weighing so heavily on me. We have 14-month-old twins. I can’t handle it anymore. Please, I’m just looking for support, advice, anything.

Dear Carrying So Much,

First, I want to say how sorry I am that you and your family are going through this. There is so much uncertainty in what you shared, and on top of that, you are caring for 14-month-old twins. It makes complete sense to me that you are feeling overwhelmed, and I’m glad you reached out for more support here with us.

I want to start with the waiting portion of what you’ve shared, because waiting for answers when cancer is a possibility can be excruciating. There are still questions about what is happening with your boyfriend’s health that his medical team will need to answer, and I know that having to wait another two weeks for the colonoscopy probably feels impossibly long right now. When we don’t have all the information, our brains often try to fill in the missing pieces. Unfortunately, anxious brains are rarely known for filling those spaces with comforting possibilities! 

Sometimes when we are scared, every possibility can feel like too much. Many end up on the wrong side of Dr. Google, stuck ruminating on “what ifs,” or feel frozen by the emotions. It can help to slow things down when you are feeling this way, and do your best to help your brain focus on what’s right in front of you right now. You don’t have all the information yet, which means your brain may be trying to solve problems you don’t have enough information to answer, like treatments or what the next steps will look like. When you notice yourself getting pulled far into the future, it may help to ask yourself, “What do I actually know to be true right now, and what do I need in this moment?” I can’t promise that it will remove the fear entirely, but often this simple act of slowing down and becoming more present-focused can turn down the temperature. 

I’m also really struck by the fact that he hasn’t told anyone this news. I absolutely understand and respect that this is his health information and that he gets to decide who knows about it. At the same time, you are living through this experience too, and it sounds like holding everything by yourself is becoming a lot.

I wonder if it might be worth having a conversation with him about how you can respect his privacy while still getting some support for yourself. Maybe there is one trusted person you both feel comfortable bringing into the circle, or perhaps your support comes from someone outside of your immediate life, such as a therapist or caregiver support group.

Being the romantic partner of a young adult navigating cancer can put you in a really unique position. You are still his partner, but you may also find yourself taking on pieces of caregiving, parenting, appointments, advocacy, logistics, and emotional support, all while having your own fears about someone you deeply love. It can be really easy for your needs to move further and further down the list when the person you love is sick.

I know the whole “put your own oxygen mask on first” saying can feel a little cliché, but it’s stuck around for a reason. Caring for yourself is vital to continuing to show up for the people you love. That doesn’t mean you need an elaborate self-care routine right now. It may simply mean making sure you have people you can lean on, accepting help with the twins if available, getting enough food and rest when you can, or having a place where you don’t have to be the strong one. You are allowed to need care while caring deeply for him.

I’d also encourage you to look into the Colorectal Cancer Alliance. They offer support and navigation for patients, caregivers, and family members, which may be especially helpful as you figure out what resources are available to your family. CancerCare also provides free counseling, support groups, education, and other resources for people affected by cancer, including caregivers and loved ones.

Most importantly, I want you to know that needing support does not take anything away from what your boyfriend is experiencing. You love someone who is going through something frightening, you are parenting two very young children together, and you have been trying to carry an enormous amount of uncertainty largely on your own. It makes sense that you have reached a point where you need some care and support too.

Sending you and your family so much care,

Perrie

Ask Perrie is Cactus Cancer Society’s advice column for the questions that young adult cancer doesn’t come with instructions for. Community members submit anonymous questions, and Perrie offers thoughtful guidance, perspective, and practical ideas for navigating life during and after cancer.

Case Files: Creative Coping Through Photography

In this new blog series, Case Files: Creative Coping, we are highlighting the creative coping practices our community members enjoy outside of our programs. If you have a hobby or practice that you’d like to tell us about, please email programs@cactuscancer.org.

Today we’ll be hearing from Valarie, one of our amazing Cactus Cancer Society community members, and one of her many creative coping practices. Read on to learn more about how she got hooked on photography, its relationship to her cancer experience, and how she’s found community through her work!

Continue reading

Register Now for YA Cancer Gabfest 2026!

Whether you’re facing down a new diagnosis, navigating life after treatment, or showing up day after day for someone you love—you don’t have to do it alone.

This year, YA Cancer Gabfest 2026 is all about Ground Control to Young Adults: Your Mission to Connection, Healing, and Growth. From December 7–11, we’re bringing together young adult cancer patients, survivors, caregivers, and the professionals who support them—for a week of connection, conversation, and real-world survivorship wisdom.

You’ll find interactive sessions, crash courses, and heartfelt stories from across the YA cancer community—all designed to help you navigate the twists and turns of cancer together.

Because whether you’re the one in the chair, the one holding the clipboard, or the one holding a hand—you’re part of this story. And your voice matters.

Join us. Let’s build the kind of support we all wish existed—stronger, louder, and together.

Back to School: September 2026

It’s September! The start of the school year is here and that means it’s time for kids to learn, but what about adults? We don’t have any curriculum or teachers to teach us, we’re adults – we need to teach ourselves. However, how do we figure out what we should learn or what we even want to learn?  One thing to do is think about school – what did you like? Did you like Math? English? History? Science? Maybe art, gym, health, or one of those other “specials” in school (At least that is what those subjects were called when I was in school)? We all liked at least something at one point – what was yours?

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You Get a Say: Shared Decision-Making and Biomarker Testing in Young Adult Cancer

As a young adult cancer survivor, I remember how quickly treatment started moving and how much information I was expected to absorb along the way. There were appointments, new medical terms, treatment decisions, and a parade of acronyms, all arriving while I was still trying to wrap my head around the fact that I had cancer at 30.

If you have ever left an oncology appointment wondering what just happened, what half of those words meant, or whether you were supposed to have an opinion about the plan, I promise you are in very good company.

Young adults are often making cancer decisions while also thinking about fertility, work, school, finances, relationships, mental health, and plans for the future. Those parts of our lives do not become less important when cancer enters the picture. They often become even more important.

You deserve to understand your options and have a meaningful voice in what happens next. That is where shared decision-making comes in.

What Is Shared Decision-Making?

The National Cancer Institute defines shared decision-making as a process in which a patient and health care professional work together to decide on the best plan of care.

Your care team brings medical knowledge, clinical experience, and information about the potential benefits and risks of each option. You bring knowledge about your own life. You know what matters to you, how your body is feeling, what you are worried about, which side effects feel manageable, and what you need treatment to make room for.

Shared decision-making means receiving information in language you can understand, having time to ask questions, and being treated as an active participant in your care. You can ask your provider to explain something again, write it down, discuss another option, or take time to think. You can bring someone you trust to an appointment or request a second opinion.

This kind of partnership can be especially helpful when your care team is considering whether additional testing could provide useful information about your cancer. Biomarker testing is one example of a decision you may want to discuss together. It may offer clues about your cancer and possible treatment options, but whether testing is useful depends on factors such as your cancer type, stage, and treatment history. Your goals and priorities can then help guide the decisions that follow.

What Is Biomarker Testing?

Biomarkers are genes, proteins, gene changes, or other substances that can provide information about a cancer. They may help your care team better understand your cancer’s subtype, how it behaves, or whether it is likely to respond to a particular treatment.

You may hear biomarker testing called molecular testing, tumor profiling, somatic testing, genomic testing, or genetic testing of the tumor. Depending on your cancer and the purpose of the test, a laboratory may examine tumor tissue collected during a biopsy or surgery, blood, or another bodily fluid.

Examples of biomarkers include HER2 in breast, stomach, and some lung cancers; EGFR and ALK in lung cancer; tumor changes involving BRCA1 and BRCA2 in several cancer types; KRAS in colorectal, lung, and pancreatic cancers; and IDH in gliomas.

Biomarker testing may help identify a targeted therapy or immunotherapy, rule out treatments that are unlikely to help, clarify information about your cancer, or determine whether you may qualify for a clinical trial.

It is also important to understand the limits of biomarker testing. Its usefulness depends on your cancer type, stage, treatment history, and the biomarkers researchers currently understand. Testing may identify a treatment option, provide information that doesn’t change the current plan, or produce an uncertain result. A biomarker result can be important information without providing every answer.

Bringing Biomarker Testing Into the Conversation

If biomarker testing may be relevant to your cancer, ask your care team how it could inform your treatment options. You can also ask what the test examines, what sample is needed, how long results may take, what it may cost, and whether waiting for results could delay treatment. When the report is available, ask your oncologist to explain what it means for your care.

Questions to consider:

  • Has my cancer been tested for biomarkers, and can I have a copy of the report?
  • What did the test find, and does it change your recommendation?
  • Could the results identify a treatment or clinical trial?
  • What are the test’s limitations?
  • How might each option affect my fertility, energy, cognition, sexual health, work, or quality of life?
  • How much time do I have to decide?
  • What other options should we discuss?

You do not have to ask everything at once. Choose the questions that matter most, and bring a support person to take notes if helpful.

Help Us Color in the Gaps in AYA Cancer Care

At Cactus Cancer Society, we create spaces where young adults can talk honestly about what cancer care is actually like. We want to know how conversations about shared decision-making and biomarkers felt from your side of the exam room.

What did you understand? What felt confusing? What do you wish someone had explained differently? What helped you feel heard?

These questions will be part of our next four-week Creative Arts Book Club, Hue’s in the Moment?

Together, we’ll work through Into the Moment: A Journal and Coloring Book to Inspire Mindful Creativity by Dani DiPirro. Each online session will include coloring, journaling, grounding activities, creative connection, and good conversation with fellow young adult cancer patients, survivors, and thrivers.

During the final 30 minutes of each session, we’ll hold a compensated focus group about shared decision-making and biomarker education in young adult oncology. You do not need to have a particular biomarker, receive biomarker testing, or arrive with expert knowledge. We want to learn from a wide range of young adult cancer experiences.

As both a young adult cancer survivor and a clinician, I know these conversations can bring us back to decisions, questions, and moments that felt deeply personal, confusing, or vulnerable. I am sincerely grateful to everyone willing to share those experiences. Your perspective matters, and we will treat it with the care it deserves.

Who: Young adult cancer patients, survivors, and thrivers ages 18–45
When: Tuesdays, September 15, September 22, September 29, and October 6
Time: 5–7 p.m. PT / 6–8 p.m. MT / 7–9 p.m. CT / 8–10 p.m. ET
Where: Online via Zoom
Compensation: A $10 Amazon gift card for each focus group session attended, with $50 total for participating in all four sessions, plus a free copy of Into the Moment

REGISTER FOR HUE’S IN THE MOMENT

This season of Creative Arts Book Club is sponsored by Daiichi Sankyo (DSI), a pharmaceutical company focused on oncology. Focus group feedback will be shared with DSI in de-identified form, which means participants’ names and identifying information will not be included.

This information is intended for educational purposes and is not a substitute for personalized guidance from your health care team. Whether biomarker testing is appropriate depends on your individual diagnosis, treatment history, and circumstances.

Ask Perrie: Looking for Answers

Dear Perrie,

My mom was recently diagnosed with metastatic, stage four bone cancer following a brutal car accident. The diagnosis came from a scan that was done because she broke her pelvis in the accident. She was five years from having “recovered” from breast cancer. My biggest question, besides the “why” that everyone grapples with, is: If the doctors were doing their job and following up with her and doing check-ups to make sure the cancer wasn’t coming back, how is she already at stage four? Why weren’t they looking? Why didn’t they check? What could they have missed? Do we sue? Can I talk to her “care providers”

These thoughts are all-consuming, and I do believe there is someone to blame. Thoughts?

Dear Looking for Answers,

First, I want to say how sorry I am that your family is facing this. Receiving a metastatic diagnosis five years after a previous cancer diagnosis is devastating for patients and the people who love them, especially when it comes completely unexpectedly. It makes complete sense to me that your brain is searching for a “why.”

When something traumatic or unexpected happens, our brains often search for reasons, answers, and patterns in an attempt to understand what happened and keep ourselves and the people we love safe. Sometimes anger can become part of that search too, especially when something feels unfair, preventable, or impossible to make sense of.

I name that because you mentioned these thoughts are all-consuming. I want to make some space for why your brain may be returning to these questions over and over without dismissing the concerns underneath them. It may be helpful to get curious about what feelings or fears are sitting below some of these thoughts. Are you afraid someone failed your mom? Are you angry that this happened after your family thought cancer was behind you? Are you trying to understand whether anything could have changed what is happening now? Those questions may help you better understand what you need as you continue to support your mom.

As far as the medical questions, I absolutely encourage you and your mom to bring these concerns directly to her care team. You deserve space to ask, “What happened?” and “What do we know now that we didn’t know before?” Her providers are going to be the people best positioned to explain her individual history, what they were monitoring, what they saw over time, and what they understand about her cancer now.

It may help to write your questions down before the appointment so everything doesn’t disappear the moment you walk into the room. You could ask what her follow-up plan had been after her original breast cancer treatment, whether there were any earlier findings that look different in hindsight, when they believe the current cancer may have developed, and whether there is anything about her previous records that they want to review again.

If your mom wants you involved in those conversations, she can also ask her medical team what they need from her so they are able to speak openly with you about her care. Sometimes having another person in the room to take notes, remember questions, or simply listen can be really helpful when everyone is overwhelmed.

If, after talking with her providers and reviewing her records, your family still has serious concerns about her care, you can seek a second opinion or ask another qualified specialist to review her case. It may also help to bring a trusted advocate or family member to appointments, take notes, and write down questions in advance.

In the meantime, I really want to encourage you to give some attention to yourself, too. You were just thrown into a completely different chapter of your mom’s cancer experience without warning. Fear, anger, grief, and uncertainty can take up an enormous amount of mental space, and you deserve support as you carry all of this. That might look like joining a caregiver or co-survivor support group, seeking individual therapy, or connecting with a breast cancer or caregiver community. You do not have to navigate this alone, and you are worthy of care and support, too.

Living Beyond Breast Cancer offers resources for people living with metastatic breast cancer, as well as for their family members and loved ones. They also provide support and opportunities to connect with others who understand the emotional challenges of breast cancer. Elephants and Tea offers writing workshops for caregivers, along with magazines and articles focused specifically on the caregiving experience.

You don’t have to stop asking questions or searching for answers. I just hope you can give yourself permission to recognize that you may be searching for two different things right now: information about what happened and a way to make sense of something that feels profoundly unfair. The first may come through conversations with her medical team. The second may take more time, support, and care.

Sending you and your mom so much care as you navigate what comes next,

Perrie

Ask Perrie is Cactus Cancer Society’s advice column for the questions that young adult cancer doesn’t come with instructions for. Community members submit anonymous questions, and Perrie offers thoughtful guidance, perspective, and practical ideas for navigating life during and after cancer.