Join A Focus Group + Be Heard!

man at desk

Are you between the ages of 26-35 and have been diagnosed with ALL or AML? We’d love to chat with you!

Join a focus group, hosted by Lacuna Loft, Elephants and Tea, and Servier Pharmaceuticals. Servier is looking to speak with 15 young adults facing cancer, ages 26-35, about your survivorship. The good, the bad, and everything in between. Better understanding your survivorship challenges will help Servier better innovate in their creation and delivery of cancer tools and resources.

The group will be focused around ALL and AML survivors but young adults facing other diagnoses may also attend. The focus group will take place on Feb. 10th or Feb 11th. 5-6:30 pm PT / 7-8:30 pm CT / 8-9:30 pm ET.

Each focus group will bring together 5-10 young adults facing cancer for a moderated discussion over 2 hours. The discussion will happen over Zoom so you can be comfy and cozy at home for the whole thing. You will be compensated for your time and energy because your voice and perspective are so important in the delivery of cancer survivorship resources.

Sign up below to join the discussion today and offer your voice!

Have questions?  Email mallory@lacunaloft.org.

GABFEST IS NEXT WEEK

Did you know…that GABFEST IS NEXT WEEK!  We’ve teamed up with Elephants and Tea, taken the greatest pieces of an in-person survivorship conference, brought it online, and spread it out over the next week.

Throughout the week of December 7th, we invite you to share, explore, and learn as we interact together.  You are the expert in your own care, so along with experts in the fields, Gabfest will combine and elevate the individual voices of the young adult cancer community.

We have a great agenda lined up, fabulous opportunities for learning and connecting, a raffle each night (more on that at our opening welcome), and more!

Learn more and sign up here!

Hodgkin Hub: Empowering the Hodgkin Lymphoma Community from Diagnosis Through Treatment

In the patient community, personal stories from people who have faced a similar cancer diagnosis have the power to offer invaluable insights, support and connection to others who may be starting on this life-changing journey.

Over the last several years, Seagen heard from many people living with Hodgkin lymphoma who shared that they wanted to know more about what to expect after their diagnosis, including how to navigate making difficult treatment decisions and getting through their treatment. To meet that need, in 2018, Seagen created Hodgkin Hub – a dedicated online resource for people impacted by Hodgkin lymphoma seeking information and support before, during and following treatment.

Visitors to Hodgkin Hub can find information and resources about Hodgkin lymphoma, and also watch real patient videos, providing a chance to hear directly from others who have been diagnosed and learn how they navigated their own journeys.

Two highlighted video series includes:

“Day in the Life” Stories

The “Day in the Life” videos highlight individual perspectives from Hodgkin lymphoma survivors on their day-to-day experiences through diagnosis, treatment, and life after. Visitors can hear from:

Kyle: A member of the U.S. military, Kyle was diagnosed with Hodgkin lymphoma after returning from his deployment in Afghanistan. Watch here.
Piper: Diagnosed during her sophomore year of college, Piper learned the importance of self-advocacy and asking her doctor questions about her treatment to get the answers she needed. Watch here.
Liz: As a young adult, Liz was diagnosed just as she was starting college and leaned on her support system of her parents and brother to help her through her treatment experience. Watch here.

“What the HL?!” Survivor Stories

The What the HL?! videos feature Hodgkin lymphoma survivors who talk about the questions they asked (or wish they had asked) after diagnosis. Each provides their perspectives on navigating diagnosis, overcoming treatment challenges and finding support during life with Hodgkin lymphoma. Visitors can hear from:

Sarah: Diagnosed while still in high school, Sarah found it challenging to continue her education while going through treatment but kept a positive outlook. Watch here.
Bryan: Bryan was first diagnosed when he was in graduate school and working full time. His support system was there for him as he faced mental struggles and needed help as he prepared for treatment. Watch here.
Philomina: After being diagnosed with Hodgkin lymphoma, Philomina became an advocate for herself, researching her diagnosis and treatment options. She maintained a strong relationship with her oncologist by asking questions and requesting more information when she needed it. Watch here.

Visit HodgkinHub.com for more information and resources for the Hodgkin lymphoma community.

This post was presented by Seagen.

Come And Gab With Us

Presented by Elephants and Tea and Lacuna Loft, YA Cancer Gabfest’s mission is to Empower the AYA Cancer Community to Embrace Their Voice and Story.

Throughout the week of December 7th, we invite you to share, explore, and learn as we interact together.  Gabfest will meet each day for 3 hours in the evening, starting at 7:30 pm ET.  Each day will consist of a crash course, an interactive panel/discussion/talk, and a hangout (aka, Gabfest After Hours).  You are welcome to attend a single session of the event or as many sessions and days as you would like.  When you sign up below, we’ll send you everything you’ll need to attend the session(s) you are interested in!

We’ll offer opportunities to connect with other young adults facing cancer in crash courses, interactive panel discussions, hangouts, and more.

Each day will have a new theme(s). The Themes at Gabfest will focus on*:
Monday: Opening Day, Who is the Expert in the Room?
Tuesday: Self-Advocacy + Storytelling
Wednesday: Mental Health + Wellness
Thursday: Metastatic, Caregiving, and Sexual Health + Relationships (separate tracks)
Friday: YA Cancer and Your Body

*Please note themes are subject to change.

Who: the YA Cancer Community (young adult cancer patients, survivors, and caregivers; healthcare professionals, nonprofit professionals, and patient advocates working with YAs facing cancer)

When: Monday, December 7th – Friday, December 11th via video chat

 

Come spill tea with us no matter where you are! Sign up below, now!

Thank you to our partners + sponsors!

Diamond Sponsor

Bronze Sponsor

abridge logo smaller

Check Out Gabfest!

Presented by Elephants and Tea and Lacuna Loft, YA Cancer Gabfest’s mission is to Empower the AYA Cancer Community to Embrace Their Voice and Story.

Throughout the week of December 7th, we invite you to share, explore, and learn as we interact together.  You are the expert in your own care, so along with experts in the fields, Gabfest will combine and elevate the individual voices of the young adult cancer community.

We’ll offer opportunities to connect with other young adults facing cancer in crash courses, interactive panel discussions, hangouts, and more.

Each day will have a new theme(s). The Themes at Gabfest will focus on*:
Monday: Opening Day, Who is the Expert in the Room?
Tuesday: Self-Advocacy + Storytelling
Wednesday: Mental Health + Wellness
Thursday: Metastatic, Caregiving, and Sexual Health + Relationships (separate tracks)
Friday: YA Cancer and Your Body

*Please note themes are subject to change.

Who: the YA Cancer Community (young adult cancer patients, survivors, and caregivers; healthcare professionals, nonprofit professionals, and patient advocates working with YAs facing cancer)

When: Monday, December 7th – Friday, December 11th via video chat

How does it work? Gabfest will meet each day for 3 hours in the evening (exact time is TBD).  Each day will consist of a crash course, an interactive panel/discussion/talk, and a hangout (aka, Gabfest After Hours).  You are welcome to attend a single session of the event or as many sessions and days as you would like.  When you sign up below, we’ll send you everything you’ll need to attend the session(s) you are interested in!

 

Come spill tea with us no matter where you are! Sign up below, now!

Thank you to our partners + sponsors!

Diamond Sponsor

A Gabfest? Join Us For A Gabfest!

confetti

Elephants and Tea and Lacuna Loft are partnering together on a week-long, online conference…

YA Cancer Gabfest: A Week of Interactive Survivorship Crash Courses for Facing Cancer.  Come spill tea with us no matter where you are!

Throughout the week of December 7th, we’ll offer opportunities to connect with other young adults facing cancer in webinars, hangouts, interactive sessions, chances for movement, and more. We are busy behind the scenes getting everything squared away but in the meantime, we want to hear from you!

Please fill out this quick survey and let us know what sorts of courses, discussions, topics, you name it, you want to have!