There is clearly a need for research and healthcare institutions to pay more attention to AYAs to help mitigate negative outcomes. So, the most urgent question becomes… What can be done to help?
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Now there is scientific research showing that the young adult cancer population, aged 18-39, is the most isolated age-group who experiences cancer, and that this isolation is linked to all sorts of quality of life issues. It affects survival rates, reintegration into normal life, and a host of other things. There is data showing that surviving cancer is not enough, we must also be helped to thrive. There is data showing that survival is insufficient.
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Have you thought of a journal prompt you think our community would love? You can submit an anonymous journal prompt recommendation!
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An adolescent just diagnosed with cancer who is exploring their identity will likely have very different needs than a young adult recently diagnosed with cancer who just had their first child.
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Check out what’s happening at Cactus Cancer Society this May!
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I do not fit the cultural touchstone of a chemo patient. I have not lost my hair from any of my various treatments. I haven’t lost a ton of weight. Sometimes, I desperately wish my appearance would match the war my body was waging on the inside, so others would know the pain I felt.
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Self-care does not have to be a big ticket item draining our bank accounts or our precious energy. We can keep it simple. What is your wise intuition telling you? What do you need? At this moment, just for today?
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Join a focus group, hosted by Cactus Cancer Society, Elephants and Tea, and Servier Pharmaceuticals. We’re looking to speak with a group of 15 young adults facing cancer, ages 26-35, about your survivorship.
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It wasn’t just denial and triggers and caricatures that got in the way of me connecting. It was the idea of being friends with people who were much more likely, statistically, to die earlier than normal, and to have very difficult things happen to them. It was the risk that everyone I knew was weighing with me: how closely do I want to be entwined with that kind of hard?
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It is not uncommon to wonder how we can make a difference when Big Things are happening. We can, though, make a difference even in the smallest of ways. We might start with our own self-care. Are we getting enough rest? Have we connected even virtually with loved ones to make sure we’re connecting? Do we need a snack?
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