Welcome to the comments and discussion of the Young Adult Cancer Book Club! We are reading Finding Balance by Kati Gardner!  Read our participants’ reactions and follow along with us each week as we read through the book! Caution, spoilers below!

Catch up from Week 1, Week 2, Week 3, and Week 4.

By Kayla V.:

Chapter 24:

Mari anxiously admired Jase while he was in the pool as she reflected on their earlier interaction. Soon after recognizing that her brother won the 400 due to Jase’s loss of breath, which likely only Mari noticed, she opened up to Giselle about her flirtationship with Jase, leaving out the summer camp location details. Then, AWP won the relay. Mari questioned Jase about losing his breath and he shook it off, offering Mari a ride home to her house to enjoy some of Mari’s mom’s baklava. On the drive, Jase did all of the things to make Mari comfortable on the drive while Mari opened up about her upcoming prosthesis appointment.

Chapter 25:

Nick made it clear to Jase he was aware of the flirtationship and on the drive home Jase reflected on the hurt he had caused Mari. The next day at school, Mari brought Jase leftover baklava. Mari accidentally brought up camp casually, but the coast was clear…no one heard of their shared camp experience. While at the lockers, Jase noticed Mari’s calluses from using the crutches and they briefly discussed the prosthesis appointment, and Jase assured Mari that he was only a text away.

Chapter 26:

Mari missed chemistry class to be at the prosthesis consultation. Wren, the doctor’s assistant, asked all of the pertinent medical questions, and then requested to talk about Mari. Mari was confused as they had just talked about her, so she had thought. Wren then asked about Mari in regard to her life outside of the medical realm, including school, fun, and her significant other. Mari was surprised by this and now wondered if she felt the feeling of hope.

Chapter 27:

Jase couldn’t stop thinking about Mari during the chemistry lecture, so he texted her “you okay” with no response. Lucas discussed the gala with Jase and Lucas hinted at the fact that he knew Jase had been a cancer patient, and during the conversation, Jase went pale and Lucas insisted on help from the teacher, Mrs. Yother. Jase and Lucas walked to the nurse’s office together, despite Jase’s efforts to blow the symptoms off.

Chapter 28:

Mari was uncomfortable during the prosthesis appointment and decided she did not like this provider, particularly due to the verbiage he used. Sadly, Mari felt like a thing or experiment rather than a person during the appointment. She did however think of Jase during the appointment and finally text him back stating that she wasn’t sure why she was there.

Chapter 29:

It was determined that Jase had a panic attack, and he was sent home, although in the back of his mind Jase had wondered if this was the real diagnosis. Jase and his mother Olivia had a brief discussion about Jase’s cancer and Jase reiterated that he barely remembered it, but Jase found out that the school had known about his cancer all along. Olivia encouraged lab work and Jase adamantly denied and was able to talk his mother out of it, as if he was scared something would pop up as concerning in the lab work, and he wanted to avoid that altogether.

By Sarah L.:

Chapter 24
“I don’t mind you asking me questions, it’s the way you learn. It only bothers me when strangers demand to know something really intimate.”

In this chapter, Mari attends a swim meet that both Jason and her brother are competing in. We get a deeper insight into her feelings for Jason (frankly still somewhat amazing to me given how he has so far treated her, but perhaps reflects the long relationship they had built at camp that we haven’t really witnessed), and she and Jason continue to flirt. Mari invites Jason home to eat baklava and meets Jason’s mother who is organizing the gala and has asked Mari to be the speaker.

A couple of moments really resonated with me in this chapter, both exploring the ways in which other people often feel like they have a right to intimate medical information. Jason’s mother tried to hide her inquisitiveness behind planning for the gala, but Mari saw through this immediately and recognized it for what it was – a desire to dive more into her life. A little later, when Jason was driving her home, he asks a series of questions about her upcoming prosthetic fitting and expresses concern that he might be being too inquisitive. Mari’s response is that she doesn’t mind him asking questions because it’s how he learns, but that she is bothered when strangers want to know intimate things. Both of these are experiences that I’m sure are familiar to many of us in this book club, and they are something that I have really been grappling with lately. The kind of constant battle to balance what I want to share with what other people want (demand?) to know. Whether that is complete strangers commenting on the fact I walk with a cane (“you’re too young for that” and “what happened to you then?” being almost daily comments at this point), or friends and family feeling like they have a right to intimate medical information that I’m not yet ready to share or frankly don’t want to. It’s something I’m finding really tough to balance at the moment, so it was nice to see it come up and to be able to think more deeply about it in the context of this work.

Chapter 25

“He couldn’t imagine feeling like you owed some sort of explanation for your life to the whole world.”

This chapter acts as a sort of bridging chapter to the upcoming prosthetic fitting. Jason and Mari enjoy baklava at her house and continue to develop their relationship at school, with Jason asking Mari whether she likes him, and Mari admitting that she does. Again, for me, what really resonated here was this question of what you owe to other people when you are sick and/or disabled, and the tension between what they might want to know and what you want to share. One of the toughest transitions I found in terms of how I relate to the world was when I started to walk with a cane, and suddenly my cancer (which had until then been reasonably easy to hide in public) became more obvious. It made it harder for me to decide who I wanted to tell, when, and how much, and led to a lot of people feeling like they could ask really intrusive questions. Like I owed them something because my disability was now visible. It was a real shock in many ways because not that much had changed for me (it wasn’t a new diagnosis, I hadn’t suddenly gotten a lot sicker, I just needed to use a cane), but it massively changed how people saw and interacted with me.

Chapter 26

In this chapter, Mari goes for her prosthetic fitting, and experiences so much that felt really familiar. The experience of endlessly repeating your story. Your medical history. Of getting really good at summing it up nice and quickly, knowing exactly what they need to know. But also those moments of hope when a doctor or medical professional takes a moment to connect with you as more than just a diagnosis. As a person, with hopes and interests and dreams beyond whatever is written in your file. Someone living and wanting to live, a full life. It was one of several moments in the book where the authenticity of the author really shone through for me. Such a mundane thing in many ways (an interaction with a medical professional), but written in a way that really made me feel seen, and emphasized that the author is writing about something she knows intimately. Even if the story itself is fiction.

Chapter 27

In this chapter, we switch back to Jase and see him struggling again to manage the school and cancer parts of his life. First, as he and his friend Lucas discuss Mari and the gala and Jason continues to hide the reality of how he knows her and his relationship with Camp Chemo. And second, when Jason has something that looks like a panic attack, although given the pillows he needs to sleep on at night and his history of chemo is likely some sort of cardiac episode. This chapter really emphasizes the strain that hiding his past is placing on Jason. Not only is he damaging his relationship with Mari, he is lying to his closest friends, and the proximity of his conversation with Lucas to the cardiac episode suggests the situation is also placing great strain on his body.

Chapter 28

“This was….embarrassing wasn’t the right word, because it was completely professional, like any other medical procedure. Uncomfortable.”

In this chapter, we again switch back to Mari’s story, and the next stage of the prosthetic fitting, which begins with just one doctor examining her and ends with multiple people examining, touching, and talking about her as if she were just an interesting problem to be solved rather than a person. This was another chapter where I could really feel the experiences of the author ringing true on the page. The fascination that doctors have with complexity (the more complex my cancer became the more doctors seemed to be interested in me), and the ways in which you can often feel like little more than an interesting problem to be solved, rather than an actual person. One of the really odd things I have discovered as it’s become clear my cancer is not curable is that I have now gone the other way – I am no longer solvable, so I am no longer quite as interesting – and I am having to negotiate new relationships with certain members of my medical team as a result. I also totally recognized the experience of being touched in ways that would under any other circumstance be incredibly intimate, but in the medical context are done without so much as a second thought, and become so weirdly normal. It’s strange having your body touched, probed and moved by relative strangers, but something I think everyone with a serious illness becomes used to very quickly!

Chapter 29

This is a short chapter in which we see Jase recovering at home after his cardiac episode, and discovering that at least some people at school do know about his cancer (like the school nurse) and that his mother kept diaries about his cancer and treatment that he can read if he wants to. Although this was a short chapter, I feel like it did a really nice job of drawing out some of the complexities of Jason’s situation. The fact he has no real memories of being sick helps to make at least some sense of his decisions not to share that information with anyone. And it was interesting to see him start to process his past at least a little. The one thing I do wish though (in this chapter and the book as a whole) is that there was occasionally a little more nuance around the choice to reveal/not reveal parts of your life. I feel like much of the setup suggests that telling everyone and being open is good, while hiding it from people is bad, and I’m not sure the reality is quite so simple. Or at least, I’m not sure my experience has been quite so simple. I have never hidden my cancer, but that doesn’t mean everyone in my life knows about it (my university students for example do not). Nor do I think they need to. Even though the cane makes at least some aspects of my disability visible. And even within the people who do know there are different categories of knowledge. Some people know everything, others know some, and others know the broad strokes, but that’s it. For me, at this moment, that feels like the right approach, but it has changed over time and I suspect will change further as I get sicker. There are elements of this that are played within the book, and maybe it will be nuanced further as I read on, but at times so far I have found myself a little frustrated at the implied argument that Jase was somehow doing something wrong by not choosing to tell everyone everything.

By Xenia R.:

Chapter 24 –

This chapter focuses on the swim meet and Mari’s feelings for Jase. She also shares with Giselle their past history.

After the swim meet ends Mari spends some time talking to Jase and he then wants to drive her home and have some homemade baklava.

This jump in the storyline of Jase not wanting to have anything to do with Mari to then driving her home and hanging with her family seems so abrupt to me and really “Hallmark Channel” but homemade baklava does sound delicious.

Chapter 25 –

Mari’s home is filled with people and emotion and protective older brothers.

They are back in school and Mari brings Jase some more baklava because her mother does not feel that he had enough during the party. During their conversation he is rubbing her hand and notices her calluses, they discuss her upcoming appointment for her prosthesis. And he tells her he is just a message away.

Chapter 26 –

Mari and her mother are at the clinic to see what can be offered. Mari is nervous about the appointment and while waiting to be called starts thinking about chemistry notes. The assistant, Wren, calls them in and Mari notices that she has similar facial uniqueness to her and is able to relate to her. Wren asks the usual questions and Mari goes into automatic pilot answering them.

However, Mari is caught off guard when Wren asks her about herself, not diagnostic questions, about what makes Mari tick. What are the other components to Mari besides her lack of limb?

Those few sentences and that realness are sometimes what is lacking in the healthcare space but what is so necessary. The care team needs to know about the patient, not the diagnostic facts but what makes them them. Their likes, dislikes, hopes, and dreams. We are more than our diagnosis.

Chapter 27 –

Jase in chemistry class and is not feeling alright. He keeps on thinking about Mari at the clinic but internally something is off. His friend, Lucas, begins to ask him about Mari, their “relationship”, and then the conversation turns to the impending gala. Lucas shared how his mom returned home from the planning meeting threw out any cancer-causing foods or cleaning products. At this point Jase’s appearance really changes and the teacher advises him to go to the nurse and for Lucas to accompany him.

Have to love Lucas’ mom’s reaction – get rid of the sugar and the cleaning supplies. My mom wanted me to eat loads of broccoli during my treatment – no thank you.

Chapter 28 –

Back to the clinic and Mari is talking to Scott, the one in charge. She seems to be getting along with him, but his bedside manner is lacking and her patience is being tested.

She is extremely uncomfortable when he chooses to exam her residual limb but then directs questions to her mother.

The situation becomes even worse when Scott decides to perform a socket test and cast part of Mari’s residual limb. Scott and Carter, begin talking about Mari’s situation while casting her, thus treating her like a piece of meat and not a person. Wren tries to make a personal connection but her energy is overrun by the others and Mari feels completely lost and forgotten in this unique, uncomfortable situation.

While processing this chapter I am thinking of a teenage girl, whose body is changing, and has to adapt to all of these changes and societal pressures while medical professionals forget that you are a human not some accomplishment – it is so messed up.

Chapter 29 –

Jase left school early after having some Gatorade and snacks. His mom wonders if he should go have some blood work, but Jase doesn’t want to.

He finds out that the school nurse knows about his cancer history and was worried that his mother might be sharing his cancer story with random strangers. She reassured him that she does not and that the Child Life Specialist and hospital psychologist told them that it was his story to share not theirs.

Jase shares with his mother that he really doesn’t remember much of his treatment and his mom tells him that she has it all written down and even has his Beads of Courage.

I remember after my treatment and even now my mom has a tendency to tell random strangers about my cancer diagnosis and everything – it really upsets me but I could never figure out why until this moment. 100% honesty she was telling my story. Wow! Thanks, book club.

Join in next Monday for the comments and discussion on chapters 30-35!
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We will talk about a few chapters each Monday until the book is done. If Monday happens to be a holiday, then the post will publish on Tuesday. Once we finish the book, we’ll use one more Monday to talk about general feelings from the book and anything else you’d like to discuss. We’ll also have a video chat book club discussion at the end! Join in, in the comments every week! Also, there will probably be spoilers so read along with us! Excited about the young adult cancer book club? Have any suggestions for future reads? Let us know!

Welcome to the comments and discussion of the Young Adult Cancer Book Club! We are reading Finding Balance by Kati Gardner!  Read our participants’ reactions and follow along with us each week as we read through the book! Caution, spoilers below!

Catch up from Week 1, Week 2, and Week 3.

By Leslie P.:

These chapters cover a variety of difficult situations. The author has created such real characters and vividly paints a picture of what it is like to first, be a teenager; second, be a teenager with a visible disability, and third, the turmoil of being a childhood cancer survivor who keeps his cancer story private.

Chapter 18

Jase is out to dinner with his parents when his Mom starts talking about how wonderful it is that Mari transferred to AWP and how cool it is that he can keep up with his Camp Chemo friends during the school year. Jase has very mixed feelings. Mari being at his school has invaded the “cancer-free” bubble he surrounded himself with. He is more worried about people at school finding out he is a cancer survivor, that he avoids Mari and acts like an ass. Jase is feeling very exposed, and uncomfortable and is in no mood to have conversations about his future swimming, college, law school career that his father expects him to blindly follow. He tries to avoid making any promises without telling his parents that he wants nothing to do with the legacy they want for him. His Mom starts talking about her Annual NYE Gala fundraiser and wants Mari to speak at it since the benefactor this year will be Camp Chemo. Jase is faced with his two worlds colliding. He has flashbacks to middle school where he was tormented by bullies, and he has not told anyone at AWP about his cancer for that specific reason. Kids can be jerks.

Chapter 19

Mari is at home playing a friendly game of Phase 10 (reminds me of the nights my family played for hours) with her siblings and talking to her brother about a party that she doesn’t really want to go to. She decided to join her brother, Leo, in hopes that she will see some of her friends from her old school that she hasn’t seen since transferring to AWP. Mari encourages her friend Ellie to go after her brother Leo, who Ellie has a huge crush on. Then she runs into Lucas from AWP, and he asks her out! She is shocked since she has never been asked out, but she turns him down. Then the awful Lindsay and Madalyn show up, surprised that Mari even came to the party, and with her brother. Lindsay is a snob per usual making snide comments about the kids from South not being cool enough to be at this party. Naive Madalyn is confused and dumbly asks Mari if she can drive with one leg. Mari gets the hell away from these girls as fast as possible in search of her friends from South.

Chapter 20

Jase arrives at the party. Lindsay rushes to his side with Madalyn right behind her. Madalyn points out to Jase that Mari is with Lucas who asked her out obviously out of pity. Blah. Madalyn is in her own little special world. She tells Jase that Mari’s brother is at the party also. Jase asks if she knows Leo, and her response is the worst! “No, but a figured I would recognize him.” Confused, Lindsay wonders how Madalyn will possibly recognize Leo. Poor, poor Madalyn says, “I mean, he’ll have one leg.” OMG! After shocked silence, Jase asks Madalyn why she would make that assumption. She stands firm in her assumption that cancer is genetic, so it seemed obvious to her. Right then Leo comes walking in on his two legs and greets Jase, who he knows from swim competitions. Leo introduces Ellie to everyone, and Ellie mentions to Jase that Mari talks about him. Lindsay gets jealous, and Jase feels like his world is shrinking quickly. Lindsay is upset and concerned when Jase tries to go outside and will not dance with her. He is so frustrated by her clinginess, jealousy and ends up breaking up with her in front of the whole party. Lindsay is furious! Jase escapes outside, where of course he sees Mari. By now Jase knows he has been a total jerk to Mari since she started at AWP and wants to be better so he starts up a conversation with her. Mari is confused by the two different Jases she has experienced lately. Jerky Jase, and fun camp chemo friend, crush Jase. Mari doesn’t sugarcoat things when she tells Jase how frustrated she is with him. I love her honesty! Mari wishes she could hide her cancer story from everyone like he can, but has no idea what that would even feel like. Mari explains to Jase that most of the time it is just easier to tell total strangers right away and get it over with. Jase offers to meet up with Mari and help her with her chemistry homework. The nicest gesture he has shown towards her lately.

Chapter 21

Mari is at work when Jase’s mother calls to asks Mari to speak at the NYE Gala. Mari is thrilled to offer any support she can for Camp Chemo and gladly accepts. Mari has some reservations about speaking only because she is trying to respect Jase’s wish about keeping his cancer story private. Jase stops by the bookstore to see Mari and is very flirtatious. Mari is cautious around Jase, she doesn’t want to be hurt by him. Mari doesn’t let his bad behavior off lightly, but she is warming up to him again. After work, they go to the cafe where their friend Davis works to study chemistry. Davis is also a cancer survivor and a recovering addict. Mari shares with Jase her guilt about speaking out to Davis’ parents about addiction and how she wishes she would have spoken up sooner. Jase ends up apologizing to Mari for being such a jerk lately, finally! Mari remains cautious.

Chapter 22

The debate class. Mari bravely shares her cancer story and the financial impact her treatments caused for her two working, health-insured parents. Lindsay, of course, is cruel with side comments and is asked to stay after class after the teacher warned her that her comments were out of line. These issues about the US health system were eloquently introduced by the author with the classroom debate. Mari holds it together until the end of class. She is tired of how the world treats her as a disabled person. She is tired of defending herself, she is exhausted by never being able to forget that she lost her leg.

Chapter 23

Jase finds Mari crying after class and comforts her the best he can. He is angry that Lindsay’s cruelty has upset Mari. Mari just wishes she could be like Jase and not have to tell her life story to everyone she meets. She asks Jase what he will do when everyone at school eventually finds out his cancer story. Jase continues to believe he can keep cancer private.

By Michelle M.:

Ch. 18

Jase and his family have dinner at the country club. His mother also brings up seeing Mari at AWP and how nice it must be. His mother also mentions having Mari be a speaker for the gala honoring Camp Chemo. You can feel how uncomfortable this all makes Jase. Then, his father arrives. His father asks how school is, is Jase ready for a swim invitational, swimming for UGA in the fall. His father wants Jase to follow in his footsteps. Go to UGA, become a lawyer. Jase’s mother saves him from this conversation by talking with his father about Mari being a speaker at the gala, how they should have Mari come to the club for dinner. You can see his father is capable of empathy when he asked which one Mari was. Jase explains she was the amputee and his father “softened”. Then there is talk of Jase being a speaker and how “inspirational” he was when he spoke in middle school. However, Jase remembers being taunted by others in middle school as “diseased” etc., how teachers would treat him differently after. I could feel how uncomfortable Jase was in this entire chapter. I think the reader begins to see why Jase has no desire for others to know what he went through. He is under a lot of pressure and stress.

Ch. 19

Starts with a family game night at Mari’s house. Mari’s brother Leo starts a discussion about a party. Giselle, tells Mari she should go. Mari wants to stay home and finish a book she is reading. She is convinced to go to the party. She is hoping some of her old South Side friends will be there. She also sees Lucas, who kind of asks her out, Mari tells him she is still new and trying to figure everything out. Lucas seems ok with her response. Then enters, Lindsay and Madalyn. Obviously, Mari doesn’t want to be around them. Mari mentions to them she has some friends from South there. Lindsay mentions how she doesn’t know how they even got there. Mari replies with they drove. The chapter ends with Mari sarcastically stating how it was nice to see them but she is going to go find her friends. I feel this chapter is really just setting up for the next chapter.

Ch. 20

Jase enters the party now. He makes his way to the basement and runs into Lindsay and Madalyn. Jase asks who all is around. Madalyn tells him some kids from South Side, she also mentions that Mari is there with Lucas. Lindsay takes this time to tell him how Lucas asked Mari out. Lindsay doesn’t mention how Mari basically told Lucas no. Madalyn mentions how Mari said her brother was there but she hadn’t seen him yet. Lucas asks her if she knows Leo, Madalyn replies no, but she would recognize him if she saw him. When others ask her how would she recognize him she says because he would have one leg. The people around her are silent and stunned that she would actually believe that. In comes Leo with Ellie. Leo introduces Ellie to Jase. Ellie mentions how Mari has talked about him. Jase doesn’t like how she looks at him as if she knows everything about him. Jase and Leo start talking about an upcoming swim meet. Jase unintentionally finds Mari as he is scanning the room. He suddenly doesn’t feel right and says he will be back. Lindsay follows him asking if he is alright. He says he is fine. Lindsay then asks if he wants to dance with her. He responds no he doesn’t and their “thing” is done. Lindsay is upset and asks if he is breaking up with her in front of everyone. Jase responds that they were not exclusive, and he can’t break up with her when they were not together to begin with. Jase doesn’t know that Mari was also outside and overheard the entire thing. Lindsay leaves; Jase and Mari begin to talk and she mentions she has to go now because she has to work the next day. Mari calls him Jase, but corrects herself and calls him Jason. (Mari only calls him Jase when she feels close to him). Jase breaks the ice by commenting how Madalyn thought Leo would also have only one leg. It seems to work and they laugh over this. Mari takes this time to let Jase know what a jerk he has been to her. He says he knows and he just doesn’t want anyone finding out that he had cancer before, he couldn’t handle it. Mari replies that she gets it. Leo flashes the car lights to let Mari know he is leaving. Mari says see ya, Jase asks if he can see her tomorrow after work, he can help her with chemistry, he saw her confused in class. Mari asks if he is watching her, he says always. I think this chapter makes it clear that Jase does have feelings for Mari and does know that he has been an ass to her. Their flirtatious conversation at the end makes it feel like they will get back together soon.

Ch. 21

Mari is at work and receives a phone call from Olivia, Jase’s mother, and she is asking Mari if she would be a speaker at the gala honoring camp chemo. Mari has a customer so she has to go. The customer turns out to be Jase. Mari tells him about the call. He seems a little bothered but tells Mari he needs a book on how to get a girl’s attention. Mari tells him in the self-help section. Jase asks if she would think less of him if he doesn’t like reading. She tells him she has judged him for more lately. He agrees and says how he is surprised she is even speaking to him. Mari says how she probably shouldn’t be because he will just hurt her again. He doesn’t seem to acknowledge this comment and instead tells Mari he does intend to help her with chemistry and when is she off work. Mari says in an hour and he waits for her to finish work. They leave the bookstore and Jase drives Mari to the Daily Grind where Davis works. Davis is leaving to go to a meeting. Jase says how he felt guilty when he found out Davis was in rehab. Mari replies that she is the one that told his parents and she has felt guilty about Davis now having a record. Jase asks why Mari didn’t tell him about this at camp. Mari then pulls away from Jase again, asking why he came to her store. Jase tells her because he needed to see her because of what a tool he has been. She asks why his friends care about her so much. Jase tells her because they are just stupid, and to not let them get to her. Mari tells him she doesn’t let them get to her it is when he does it to her. She then goes to leave and loses her balance. Jase asks her to stop for a minute. Mari says stop catching me, just to drop me later. I think it is clear to see that Mari isn’t ready to fully trust Jase again, which is completely understandable.

Ch. 22

Mari is in debate class. She is giving her speech on her story and how medical insurance, billing has caused issues for not just her, but other families with children facing a cancer diagnosis. Mari explains how some families even end up filing for bankruptcy. This is the 1st out of line comment Lyndsay gives saying how that families filing for bankruptcy isn’t bad for her because her dad is a bankruptcy lawyer and it keeps her in Prada shoes. The debate continues. Mari is rebutting about research dollars not going towards childhood cancers. Lindsay again interrupts to say how kids don’t actually get cancer, it only happens in movies and is super rare in real life. Mari continues the debate until time is called. It is now time for questions for the debaters. Lindsay then brings up a documentary about the sugar/cancer story and how this woman was completely cured etc., that if chemo is so expensive why not just cut out sugar. Mari explains how she has heard this story before and it is also the equivalent of victim shaming. Lindsay then responds with “oh did I hit a nerve”, and how Mari’s parents should have planned better to be able to afford a child having cancer. Mari needs to get away from Lindsay and everyone else who has never been in her shoes and doesn’t understand. She runs out of the classroom as soon as the bell rang. I have felt the same way before in certain situations, hearing the sugar/cancer connection story or other “cures” that people know about.

Ch 23

Jase sees Mari sitting on a bench in the hallway crying. Jase tries to comfort Mari she always seems so strong that words can not hurt her. Mari cries to him saying how she wishes she could be like him with no one having to know about his cancer. Mari then tells him about her appointment with a new prosthetics company. Mari then asks Jase what he will do when people find out about his story, because they will eventually find out. They then talk about being in charge of their own story. Jase then tells her how he isn’t even sure his leukemia is part of his story. The chapter ends with Mari saying how she has no idea what that is like, but she bets it is nice. I can see how Mari thinks it must be nice for Jase to not “have to” feel like explaining his situation to everyone.

By Shamika H.:

I loved reading the book Finding Balance. Chapters 18-23 was the best part of the book. I learned a lot about the characters. It was an amazing book and I would love to read another book by this author. This book helped me find balance in my own life while dealing with cancer.

Join in next Monday for the comments and discussion on chapters 24-29!
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We will talk about a few chapters each Monday until the book is done. If Monday happens to be a holiday, then the post will publish on Tuesday. Once we finish the book, we’ll use one more Monday to talk about general feelings from the book and anything else you’d like to discuss. We’ll also have a video chat book club discussion at the end! Join in, in the comments every week! Also, there will probably be spoilers so read along with us! Excited about the young adult cancer book club? Have any suggestions for future reads? Let us know!

Welcome to the comments and discussion of the Young Adult Cancer Book Club! We are reading Finding Balance by Kati Gardner!  Read our participants’ reactions and follow along with us each week as we read through the book! Caution, spoilers below!

Catch up from Week 1 and Week 2.

By Kat H.:

In Chapters 12 – 17, Mari is torn, constantly wrestling with the disconnect between Camp Jase and School Jase. Mari is already frustrated with the fact that she does not have the option to appear “normal,” but then to have one of her best camp friends and positive aspects of camp treat her so coldly and negatively when at school, is confusing and disconcerting for her. In these chapters, she flips through emotions nearly constantly: sadness, anger, indifference, and then the cycle repeats. I feel very fortunate that in my own cancer experience, my friends and family were amazing. I was very communicative about what I wanted and needed from my circles, those close to me and farther out. But I think what I relate most to in these chapters is the internal cycles and frustrations that Mari has. I had many full-blown conversations in my head about why did this happen (physically), why did this have to happen (emotionally), how had I never even heard of tongue cancer, being terrified of all of the treatment options, etc. I had never even had an IV before my diagnosis! So I appreciate the internal challenges that are so prevalent with Mari in these chapters and definitely see that cycle within my own story.

By Jeannette S.:

First, this is a super compelling story of what I am interpreting ups and downs of the cancer diagnosis. Even though I was not diagnosed at a very young age, there is much that I can relate to.

In my interpretation of Jase in these few chapters, he is much very much wanting to be a “normal” kid and has been because his secret of his cancer diagnosis has been kept. Zeke knows that he has been to camp, however, has been generous to keep his confidentiality. Zeke appears to be super mature and most students might do the lesser. To me, the Jase character has been much of my family reactions…wanting to keep everything back to “normal” and not wanting to admit to the cancer diagnosis. The support has been lacking at times, much like Jase in his school life.

Mari has been a super strong character, although we see her express her frustration and sadness at the lack of support from those on the outside of her family group. She appears to always be able to come home to family and express her “secrets”/ school issues with Jase, especially to her brother. Mari, like many of us, has been “forced” (not sure if this is the right word) to grow up or become more mature looking at money problems and problems with the overall society and looking at illness/disease — being it cancer or mental illness, etc… Watching Mari going through her many ebbs and flows reminds me of what I have gone through with survivorship. One of my favorite parts was when she was visiting Davis in the cafe and comparing a cancer diagnosis with alcoholism because you never know when it will come back. For me, it is so true. Having been diagnosed with ovarian cancer, it can be very likely for its return. However, the trust in the doctors, just like the trust Mari has with Davis to maintain his sobriety, seems to be my connection.

We are beginning to see the two different worlds/lives Mari and Jase are from. Jase also keeps waking up at night having difficulty breathing and cannot seem to get back to his rhythm of swimming. Some of this may be because of his choice in relationship discord with Mari or could it be his cancer coming back? Since I have not read further, I would think it be quite ironic if his cancer recurs again since he has been treating Mari so poorly. In many ways, Jase does not know how to deal with someone so openly dealing with their survivorship. This represents many of those around me who do not like to talk about it or those just wanting me to be “ok.” Much like Mari, I am open to questions and the education of others. In my mind, if I can help someone to catch ovarian cancer early, I know that provides them with life for a little longer.

By Rachel M.:

Chapters 12-17

I can relate to Jase. As annoying as he’s getting and how terrible he’s being to Mari, I can see some of myself in him. His need to hide his diagnosis because he’s afraid of what people will say hits close to home for me.

I was diagnosed at the end of my freshman year of college and am currently in complete remission and in my senior year. When I was done with treatment and ready to return to school, I had no clue how to go back and live like a college student anymore; I felt like all people would see in me was my past of cancer. I was afraid that would become my identity. My hair was just starting to grow back when I returned to campus in the spring of my sophomore year, and the hair I had just after treatment was thin and slow-growing. I felt that just by looking at me, people could tell that I had cancer.

To me it was obvious. I had spent months getting chemo and radiation; that had been my reality for half of a year. After experiencing that season of my hair coming back in, I can relate to Mari in a small way from a short season of my life to how she feels: wishing she could keep her past diagnosis a secret like Jase can.

Just as Jase asked Mari to pretend not to know him, I was afraid that friends of mine would ask me to pretend the same because they didn’t want to deal with the heaviness of a friend with a cancer diagnosis. And for some, that heaviness was too much, and our friendships dissipated.

I can’t imagine being in Mari’s shoes, though. To have a cancer friend, who understands the crap I’ve been through, just decide to cut ties to try to be “normal” would break me. I wouldn’t accept help in chemistry from that person either.

Being cut off by a friend who knows the hardest, most painful parts of my past who suddenly decides they don’t want to be my friend or acknowledge our shared pain would leave me spinning. It would make me want to put cancer behind me too and completely forget about it.

Unfortunately, it’s not that easy. At least for me.

Like Mari, I still feel like I owe my story to people sometimes. Just like Mari says, “I hate that people feel like they deserve to know.”

However, my diagnosis has formed such a big part of who I have become, that sometimes I’m the one who thinks people deserve to know, not the other way around.

When I got back to school after treatment, I didn’t stop to consider whether I actually wanted to share my story. I just felt like I owed it to people. I believed that word of my cancer would get around anyway, so I might as well start sharing, whether I was comfortable with it or not.

I would explain my medical history to people, and a wave of anxiety would hit. That should’ve been a sure sign that I was not ready to share.

Everyone shares at their own pace, and as I continue reading, I hope Jase learns to share his story again and can put his fear of others’ responses behind him.

Join in next Monday for the comments and discussion on chapters 18-23!
—
We will talk about a few chapters each Monday until the book is done. If Monday happens to be a holiday, then the post will publish on Tuesday. Once we finish the book, we’ll use one more Monday to talk about general feelings from the book and anything else you’d like to discuss. We’ll also have a video chat book club discussion at the end! Join in, in the comments every week! Also, there will probably be spoilers so read along with us! Excited about the young adult cancer book club? Have any suggestions for future reads? Let us know!

Welcome to the comments and discussion of the Young Adult Cancer Book Club! We are reading Finding Balance by Kati Gardner!  Read our participants’ reactions and follow along with us each week as we read through the book! Caution, spoilers below!

Catch up from Week 1 here!

Week 2: Chapters 6-11

By KM H.:

Chapter Six.
Mari is having trouble keeping up with her classmates in AP chemistry—they move faster than her old school, and they’re a bit ahead of where she was. On top of that, Lindsay and another classmate are being ableist, classist jerks. Mari’s chem teacher asks her if she can stay after school for supplemental instruction that will help her catch up, but Mari can’t because her transportation is tied to the bus schedule.

This chapter has such a nicely done illustration of how structural issues can stand in the way of success. Mari is struggling in her chem class. The help is there, but she can’t get it because she needs transportation home, and the only transportation home that she can get is via the MARTA bus system. It has nothing to do with her ability to understand or her culture or her cancer history, but rather the way in which the world will not or cannot accommodate her needs. It’s not fair, and it’s a great demonstration of how we as a society could do better. It’s easy to look at students or people who aren’t successful or who are struggling and heap the blame solely on their shoulders. But there are often other factors at work, often issues beyond their control, that keep them from thriving—and they’re usually things that they can’t help.

Chapter Seven.
Jase takes Lindsay home from school and drops her off at her house. She’s trying to touch him and be “girlfriend-y” in ways that he doesn’t want, and she’s being an ableist jerk again when it comes to Mari. After dropping Lindsay off, Jase gets a call from his mother, detailing that she’s going to hold a charity event for Camp Chemo. Jase freaks out because he believes his secret will be revealed.

As much as I would like to harp on Jase for being an asshole to Mari, I find his character to be highly understandable. He’s been bullied at his old school. He’s got some serious social anxiety because of it. And he’s seeing firsthand that his fears are justified because of the way that Lindsay and others are treating Mari. I also “get” him because, in my own life, I’ve tried to stop talking so much about being a cancer survivor. Not because of any bullying or anything, but because it’s nice to pretend to be normal sometimes … even though I’m definitely not.

Chapter Eight.
Mari is in class, and Lucas asks her a few questions about driving and such with a prosthetic leg, which Mari tells him would be a pain because it would get in the way. Mari is starting to make progress with friends in this chapter—or, at least, we finally get to see her new friends at school.

I like this chapter because it really nicely shows when and how it’s okay to ask questions regarding a person’s disability. It reminded me of when my brothers would ask if I could do something or not on chemo. They weren’t being assholes or trying to put me down or asking something invasive—it was just something that came up in the course of a normal conversation. The topic came. I answered. We moved on. Like, you know, a normal thing. Like I’m a person, not a curiosity.

Chapter Nine.
The ableist assholery of Lindsay really comes out even more than usual in this chapter. She is with Jase and several other friends, and she just lays into Mari and her leg, asking questions about Mari’s body that are 100% not okay. Jase just sits there, not correcting them or telling them to stop. I understand that he’s afraid of being found out, but … my dude … you don’t have to out yourself as a cancer survivor in order to tell people to not be ableist jerkwads.

Anyway. Mari overhears and immediately runs away. Jase follows—he’s actually starting to come to his senses—and attempts to comfort Mari. She, understandably, pushes him away.

I’m really starting to hope that Jase will try to make things right with Mari. I don’t expect this to happen quickly because, well, we’ve got most of the novel still to go. 🙂

Chapter Ten.
Jase drives his car to Mari’s house, trying to find her. He doesn’t know what his intentions are, but I suspect it has something to do with, I dunno, maybe apologizing and trying to make things right? Hopefully? In any case, he doesn’t find her because she’s at a coffee shop (oh, the days of randomly visiting coffee shops!).

Chapter Eleven.
Mari is visiting Davis at the coffee shop. Davis was the male lead from Gardner’s first book, Brave Enough, which you should definitely go read (it’s excellent). Mari is catching up with Davis, who is newly sober (this book seems to take place before Brave Enough, if I’m understanding the conversations and timeline hints correctly). She’s also hoping to catch some help with her chemistry issues, but Davis isn’t really equipped to help there. He asks her about her school, and she avoids telling him because she feels like he’s got enough on his plate, and she doesn’t seem to want to bring the mood down.

In this way—hiding what’s really going on—Mari is a lot like Jase. She’s covering, trying to pretend everything is normal and good when really she’s hurt and angry at how Jase has treated her. She feels betrayed by a friend and has no one she feels she can really talk to about it. I feel for her, but I also want her to talk to her friends or parents or someone about what’s going on with Jase. But, hey, if she started making good decisions this early, this would be a novella and not a novel. 😀 Still, I’m rooting for her. And I hope she gets the help (both in chem and in life) that she needs.

By Betsy B.:

Chapter 6
Mari has just started at AWP and is in class with some truly awful girls who don’t take the time to understand her amputation. They mock having to use a wheelchair right in front of her. As an adult, I wonder how these girls could be so tone-deaf, but then I remember my high school experience, when I was diagnosed my senior year. It was only a couple of weeks after my diagnosis when the school newspaper published a story about tanning (so 2005). They interviewed the popular girls who clearly went tanning a lot, and they had completely ignorant responses. “My mom tans and she doesn’t have cancer so I don’t think I will either.” “I’d rather have cancer than be pale.” I know, right? On top of her clueless classmates, Mari also has to deal with her chemistry teacher pitying her and basically telling her to drop the class. It’s hard to believe this school is supposed to be better than her last one.

Chapter 7
“Jase was beginning to wonder if this was even a secret he could keep anymore. But at the thought of what that meant, Jase couldn’t breathe.”
This chapter is mostly about Jase panicking about hiding his past from his insufferable not-girlfriend and everyone else he knows. It’s hard for me to feel bad for him at this point because of how he treated Mari. But I do understand not wanting to be the cancer kid. For several years after my treatment ended, I didn’t want to tell many people about my cancer. I didn’t want to be treated differently. Considering how ignorant the people at Jase’s school are, it does make sense he would be afraid to tell them. Near the end of the chapter, Jase’s mom tells him about a charity gala she’s planning. And good news! The charity will be Camp Chemo! And his camp friends can come! Once again, he begins to panic and worries about people finding out about his secret life.

Chapter 8
“Thankfully, she was no longer much of a novelty, but she could still see the questions in her new classmates’ faces—wondering what they could ask her and what was off-limits.”
This is a short chapter that introduces us to some of Mari’s new school friends, Addison and Zeke, and her teacher Giselle, who is also dating one of her big brothers. She also talks with Lucas, one of Jase’s friends, who seems genuinely interested in learning more about her and he is respectful when he talks to her. I gotta say I’m Team Lucas right now. At the end of the chapter, she is dreading sitting alone at lunch and misses her old school and friends. This chapter is mostly about Mari’s loneliness. She is grateful to have met some nice people but “they weren’t at the random text stage or anything.” She misses having friends she really connects with. She feels like an outsider still, especially when she has no one to sit with at lunch.

Chapter 9
This chapter is cringe-worthy.
1. AWP has a student lounge for lunch where they can order food from local restaurants. That is not real, is it?
2. Jase’s not-girlfriend and her friend are terrible humans.
3. Jase makes the world’s tiniest gesture of apology.
During the lunch that Mari is eating alone, she overhears Jase and his friends discussing her. Or rather, gossiping. Lindsay and Madalyn think it is hilarious to speculate about her grades, where she lives, her amputation. Jase feels uncomfortable and attempts to steer the conversation in another direction, but fails. After they see Mari running away crying, Jase goes after her to say he’s sorry, “don’t let them get to you.” Boy, please. Even though she is very upset, Mari rightfully sends him away. I feel so bad for her–not only does she have to deal with being the new girl at school, with an amputation, she also has to deal with her so-called friend ignoring her most of the time and waving off hurtful comments other people make.

Chapter 10
“He wasn’t normally a jerk, but it was as if since Mari’s arrival at AWP he couldn’t be anything but.”
Jase is feeling bad. Good, he should. He looks up Mari’s address and drives to her house, presumably to attempt to apologize again. But she’s not home and he feels stupid for driving all the way to her house. Even though I’m angry with Jase still, I can tell he feels guilty and confused. Guilty for the way he treated Mari (obviously), but I also think he feels guilty that he can hide his cancer and she can’t. He has the luxury of being “normal.” Something that she will never have. He doesn’t know how to make up for his guilt, but he drives to her house anyway because he knows he needs to do something.

Chapter 11
“The way those girls laughed. It all hurt, but the embarrassment was worse.”
Mari has had an awful day and goes to hang out at the coffee shop where Davis works. Davis is a good friend from Camp Chemo, and she hopes he can distract her from Jase and the mean things the girls said at lunch. When he asks about Jase, Mari doesn’t say anything and goes back to her chemistry homework. As she’s working on her laptop, she sees an ad for a prosthetics company and she feels ashamed for looking at it. I think she has spent a long time telling herself that she doesn’t need a prosthetic leg and that she can do anything a “normal” person can do. I understand her desire to be normal, especially after she’s had such a bad day at school when it feels like she is her amputation. No one at school sees her as a whole person. She begins to feel overwhelmed and defeated, thinking of her appointment at the prosthetics office, about school and chemistry, about Jase. “She did not care.”

By Jessica B.:

Chapters 6-11
In these chapters, Mari is having trouble adjusting to her new school. Her AP Chemistry class is especially challenging, but she has managed to make a couple of new friends. We don’t know much about Zeke and Addison yet, but they seem to be much kinder to Mari than her other classmates. The people in Jase’s social circle are sometimes very cruel to Mari while acting like they don’t realize they’re being rude. It’s almost like insulting someone, but then following it up with “no offense”. It seems very clear that they are not nice to people they see as “other”, which is starting to make it clear why Jase doesn’t want them to know about his cancer. The fact that Mari takes the MARTA to get home seems to be a sticking point with them, which I think it just ridiculous. I don’t know why someone’s method of transportation is considered a measure of someone’s value. I think this just shows how shallow some of the students are.

On Jase’s side, he is struggling with his decision to put distance between himself and Mari. His friend Lucas is starting to show interest in dating Mari, and Jase is not a fan. He also has to deal with his “girlfriend” and other friends not being nice to Mari. There is the line between ignorance and cruelty and Lindsay and Madalyn cross that line, and then act shocked when Mari hears them and gets offended. Jase does take the time to check on her, which seems like he might finally start letting some cracks show in the wall he put up, but Mari turns him away, which shows that even if he might be letting that wall down, she’s not ready to.
At the end of the section, Jase, who Mari is now referring to as Jason (ouch), is seeking out Mari to talk to her. Hopefully, this is a sign that he is ready to start mending the multi-year friendship that he severely damaged, but only time will tell. He clearly has a lot of work to do if he wants to fix everything he almost destroyed.

By Ffion K.:

Chapters 6-11

I was happy to receive and read this book as it is always somewhat cathartic to read books and hear experiences of other people who have or have had cancer! However, I was immediately shocked at how cruel high school-age students are. I was older when I received my diagnosis, and I suppose everyone I knew was just older and more mature, as I just did not experience any of the poor treatment that Mari and Jase, unfortunately, seem to endure. The book also shows the clear divide between two different types of cancer experiences: one where you are so far out from treatment and have no lasting visible effects, compared to one where you have lost a body part and it is forever out in the open.

Jase is not very nice to Mari throughout these chapters. He acts like the typical “cool and popular” guy and is so flippant towards her. You start to be able to tell a few chapters in, though, that although he doesn’t want it to affect his “image” at school, he does care about how he’s treating Mari and is starting to feel bad. Lindsay, a girl Jase is hanging out with, is even crueler and shows, unfortunately, just how nasty some girls can be. Some of her comments really break your heart for Mari.

In Chapter 6, Mari is having a lot of trouble in AP Chemistry. Lindsay and her friend “Y” are being very insensitive, again, but at least Mari has a sarcastic come back to them that she “gets good parking.” Lindsay jokes that she forgets Mari is disabled, but Mari knows that neither Lindsay nor her friend actually forgets. As if the social troubles Mari is having aren’t enough, the teacher pulls her aside to discuss how she’s adjusting to the new school and that her grades are lagging. She wants Mari to come to a tutorial after school, but this potentially conflicts with Mari having to catch the MARTA bus home each day. This just highlights the types of things that Mari and other disabled students have to worry about and juggle that other students don’t. This new school was supposed to be better, but at this point, Mari’s really feeling that all this new school is doing is pointing out her inadequacies.

In Chapter 7, Jase continues to hang out with, but be annoyed by, Lindsay. Jase’s mom tells him she is going to hold a benefit event for Camp Chemo, and Jase worries that this will “out him” as having had cancer.

In Chapter 8, Mari has been at her new school, AWP, for a month. Mari and Lucas chat. Lucas has been friendly to Mari and she is starting to feel the starting of a little crush. Mari gets more information about some of the students, learning Zeke’s dad is a team physician for the Atlanta United. It seems to her like everyone is so much more well off than her. Mari misses her larger group of friends from South Side because she has to have lunch in the student lounge alone that day.

In Chapter 9, Jase, Lindsay, and Madalyn (“Y”) are in the student lounge continuing to talk about Mari behind her back. Y saw Mari’s quiz and knows she’s flunking. Jase, although he continues to hang out with her, is starting to worry that Lindsay might think they’re exclusive, which he doesn’t want. The girls then start to ponder, out loud, if Mari is missing any other body parts, “like, her vagina?” says Lindsay. Mari is at that moment just approaching, hears this, drops her things and bolts out of the lounge. This is particularly heartbreaking to the reader. It’s bad enough reading the awful things these teenagers are saying and thinking, but then to think of how Mari would feel walking in and hearing this is even worse. Jase goes after Mari, even though Lindsay yells for him to stop. Jase finds Mari crying at her locker, but she says to leave her alone, and he does, walking away. As the book states, the wall he’d put between them definitely gets another layer added to it.

In Chapter 10, Jase has been basically ignoring Lindsay since the incident in the student lounge. He feels bad about how hurt Mari looked. He notes that he isn’t normally a jerk, but hasn’t been able to help it since Mari came to AWP. Honestly, as the reader, it’s hard to not think that Jase just is a huge jerk, period. He certainly is very immature, whereas Mari seems quite mature. Jase spontaneously ends up driving to Mari’s house, although he’s not sure why. She isn’t there, however. Her brother Leo answers,
and Jase says to not bother letting Mari know he stopped by.

In Chapter 11, it starts with Leo obviously telling Mari that Jase stopped by, over a text message. Mari is at a coffee shop visiting her friend Davis, also a cancer survivor, that has struggled with addiction. However, she’s also reliving, in her head, the hurt and embarrassment from what Lindsay and Madalyn had said. Davis works at the coffee shop and has to do community service at the hospital he was treated at, as a result of an arrest to do with his addiction. He asks how things are going at AWP and says he assumes
Jase is helping Mari find friends, for which she doesn’t correct him. Mari watches as an ad pops up on her computer for prosthetics. She ponders how everyone thinks she should want a prosthesis but she doesn’t. Then she thinks that she’s never going to be Jase’s girlfriend, probably going to fail AP Chemistry, and get kicked out of AWP. She exclaims that she is done and defeated and does not care anymore. It’s a sad end to this chapter and really leaves the reader hoping things get better for Mari!

Join in next Monday for the comments and discussion on chapters 12-17!
—
We will talk about a few chapters each Monday until the book is done. If Monday happens to be a holiday, then the post will publish on Tuesday. Once we finish the book, we’ll use one more Monday to talk about general feelings from the book and anything else you’d like to discuss. We’ll also have a video chat book club discussion at the end! Join in, in the comments every week! Also, there will probably be spoilers so read along with us! Excited about the young adult cancer book club? Have any suggestions for future reads? Let us know!

Welcome to the comments and discussion of the Young Adult Cancer Book Club! We are reading Finding Balance by Kati Gardner!  Read our participants’ reactions and follow along with us each week as we read through the book! Caution, spoilers below!

Catch up from last week here!

Week 1: Prologue – Chapter 5

By Melissa B:

Prologue
After reading this you can definitely feel the chemistry between Jase and Mari. There is something special about their relationship. Jase is so caring and concerned for Mari’s well-being when she is injured at camp. Mari is definitely falling for him.

Chapter 1
Mari gets injured at school after getting knocked down in the hallway after an altercation with other students. Poor girl is in the wrong place at the wrong time. She hits her head, it seems like she has a concussion but she blows it off. Then, falls again later in the day, in the cafeteria. I do understand where the school is coming from for her safety.  I also can see Mari’s side. She has been through so much already, using a wheelchair is taking away some of her independence, strive to fit in, and be somewhat like the other students. It seems like she has tried a prosthetic in the past but it did not work.

Chapter 2
Mari enrolls in the same school as Jase. They have one class together and he totally blows her off. So rude, I’m not really liking Jase right now. He is such a jerk. Poor Mari, high school is hard enough, and going to a new school with a disability makes it that much harder. I’m sure when she saw Jase, she felt this comfort. When he did not even acknowledge her, her heart must have broken. Jase is so worried about himself and he doesn’t want Mari to blow his cover about his previous cancer diagnosis. I get it. I feel like people treat you differently when they know you have been diagnosed with a potentially life-threatening illness.

Chapter 3
Jase sees Mari at the bus stop and tried to apologize but she is not having it. I’m glad she ignored him, put him right back in his place. Mari’s family is waiting to see how her first day went, of course, she avoids the whole Jase story.

Chapter 4
Jase and Mari are texting back and forth and he does not want her to tell anyone how they know each other or anything about his cancer diagnosis. Mari is a good friend and agrees not to say anything to anyone at school. She sits down with mom and discusses possibly looking into a prosthetic leg again because this time maybe they have something that will work for her. I feel like if Mari is ready for it, she should give it a chance. I also feel that she has to face her cancer diagnosis every day, whereas Jase, his diagnosis was so long ago.  He doesn’t really remember it and he can go about leading a “normal” life because he doesn’t have that daily constant reminder (missing a limb, using crutches).

Chapter 5
I think Jase feels really bad for the way he treated Mari. Other students are noticing her hanging out with her and one of Jase’s friends is even interested in her. I feel like Jase is starting to get jealous of her. He attempts to speak to her after class and she just ignores him. I don’t blame her.

 

By Ashley L:

This book details two distinct ways of handling telling others about a cancer diagnosis. Mari’s cancer situation is abundantly more visible than Jase’s. Mari’s leg amputation is an automatic symbol that something was wrong. Meanwhile, Jase can conceal his diagnosis because he does not have any outwardly apparent physical symptoms or side effects.I feel terrible for Mari because of the discriminatory language spoken both to her and about her, throughout the chapters. In chapter one, the assistant principal gives Mari an ultimatum to either buy a prosthetic leg or use a wheelchair in order to stay in that school. She said, “But Mari, you could look like everyone else…” She’s trying to convey that it’s for Mari’s safety when it is clearly a move to prevent the school from being sued. Also, by saying that statement, she’s implying that Mari is somehow less-than. In chapter two, we encounter many ignorant comments from Lindsay. “’God, why doesn’t she wear a robot leg?’ Disgust dripped from Lindsay’s voice. ‘It’s just gross to be out there like that.’” She also says “God, her life must be awful.” It’s so sad to see Mari doubt herself when she considers getting a prosthetic leg in chapter 5. Also, it’s depressing to know that society’s view of beauty and normalcy is exclusive. It’s like saying, if you don’t fit into these specifications, you are not a person.I also feel bad for Jase. He sees the way people stare at Mari and he hears the awful comments about cancer from the ones around him. In chapter two, Lindsay says “But aren’t you afraid of catching it…I’d be nervous the whole time,” after he did his presentation on volunteering at a hospital. Then in chapter four, when Jase was speaking with Lucas, “ ‘Did you hear she had cancer.’ Lucas said ‘cancer’ like it was the plague.’ ” I can understand Jase’s hesitancy in telling others about his cancer diagnosis, he doesn’t want to be seen differently by his peers. Plus, he doesn’t even remember having it because he was so young. However, it does not excuse his cruel behavior towards Mari when she initially came up to him on her first day in that school. He should have handled it differently.

 

By Rachel C:

The book starts out talking about Mari Manos and Jase Ellison at Camp Chemo, a camp for individuals who have had cancer. Mari, an amputee because of her cancer, and Jase, who has leukemia when he was 3 and doesn’t remember it, spend the summer at camp in a “flirtationship”.

After summer is over, they both head back to their separate lives. I gather that Mari returns to a middle-class family and public school and Jase to a more wealthy family and an expensive private school.

Back at school, Mari, having only one leg and walking with crutches, falls twice in one day. The first time due to a fight that broke out in the hallway which banged into her and the second because she slipped on a grape in the lunchroom. The school calls in her parents and feels it’s not “safe” for Mari to be in the school and recommends either a wheelchair or a prosthesis, neither of which she wants nor has the school even considered the cost of a wheelchair or prosthesis and how it will impact the family’s finances.

Mari didn’t like her ultimatum of getting a wheelchair or prosthesis, so she leaves the school. She receives a scholarship to go to the same private school that Jase goes to. People in the school pity her, saying how awful it must be that she had cancer. On her first day there, she walks up to him to say hi, and he pretends like he doesn’t know her. She is heartbroken. Jase texts her and begs her not to tell anyone that he had cancer and that no one in the school knows.

This book covers a lot of emotions and familiar feelings. This part of the story speaks to the “privilege” (I don’t know if that’s the right word??) that some cancer survivors have. Some of us don’t have visible scars, baldness, or missing a limb or we are further out from our diagnosis/treatment, so if we don’t want to talk about it, we don’t have to. But others, their scars with cancer are much more visible and they can’t avoid talking about it because people will always ask. Cancer survivorship looks different in everyone. Cancer, regardless of what kind and at what age, complicates your life!

 

By Alyssa G:

Prologue
In the prologue, we meet Mari. Mari is an amputee and it begins at Camp Chemo. There we also meet Jase who is her crush. They are in the pool area and it’s slick because the surface is tile. Mari falls and scrapes her knee and she jokingly says that she is falling for Jase. I thought this was funny because I will often say oh no I hope I don’t fall if I ever fall physically or have a crush on someone. They then almost kiss until they are interrupted by the leader of the camp Margaret.

Chapter 1
Mari is now at school. We see her at her locker exchanging books carefully, when a fight rolls down the hall and the boys fighting knock her over. Like everything else though, she gets up and keeps moving. She talks about how annoying it can be to be everyone’s “inspiration,” and I have been feeling that lately. One of my college professors and even one of the felllows at the doctor’s office made comments about how strong I am to come to school feeling how I do and inspirational my hard work is. I don’t really have a choice though, so I just power through trying to live my life. Then it transitions to lunch and Mari slips and falls again caused by a grape. She is then called into the principal’s office and they tell her she needs to start using a prosthetic leg or wheelchair for the safety of other. Her mom and dad are not having it with that and tell the principal they are taking Mari out of that school.

Chapter 2
Chapter 2 is written from Jase’s point of view. We see him giving a speech about volunteer work he did over the summer. He volunteered at the children’s hospital with Melissa, the child life specialist, to make bags to keep the kids busy during chemo. We find out though that no one knows Jase is a cancer survivor. He wants to keep it that way, but it could be ruined because Mari now goes to school there too. Jase tries to ignore her and his feelings for her, but they all bubble up and he can’t take it. He doesn’t want the past to come back but he doesn’t want to lose a relationship with Mari. It’s hard going to school especially somewhere new and trying to keep the fact that you had cancer a secret. Going to college now I’m still trying to figure it out. It’s hard because you don’t want to be treated differently or get questioned about it.

Chapter 3
Chapter 3 is back from Mari’s viewpoint. Jase tries to talk to her at the bus stop, but Mari ignores him. She doesn’t want to deal with him after he ignored her in chemistry class. She then gets home and realizes everyone is at home and waiting to hear about how her first day went at the new school. But, before she gets in the house there is a brochure for a prosthetic company for her in the mail. This infuriates Mari and reminds her that she couldn’t go to her old school anymore because they were requiring her to do something she refused. In the end, we also see that Jase has finally texted her and said that they need to talk. It just infuriates me with the school requiring Mari to change her 504.

Chapter 4
Mari reads the message from Jase and can’t believe that no one knows he had cancer. Mari doesn’t really want to hear from Jase now if she has to hide her feelings for him and their friendship so he can keep living without people knowing the truth about him. Then Mari has a conversation with her mom about possibly getting a prosthetic, it’s it is different from the last one she had. Maybe she wants a prosthetic now to try to fit in? I don’t blame her it’s hard to fit in when you are all puffy from steroids and have short hair, let alone only one leg.

Chapter 5
Jase is in Chem and can’t get Mari out of his mind. Mari is still ignoring him, thus keeping his secret. However, a guy named Lucas now is thinking about asking Mari out. The whole cancer aspect does freak Lucas out a bit though as it does for most normal people. I think Jase and Mari need to stop being petty and talk to each other privately since they both have feelings for each other. If not, then there will never be a resolve.

 

Join in next Monday for the comments and discussion on chapters 6-11!
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We will talk about a few chapters each Monday until the book is done. If Monday happens to be a holiday, then the post will publish on Tuesday. Once we finish the book, we’ll use one more Monday to talk about general feelings from the book and anything else you’d like to discuss. We’ll also have a video chat book club discussion at the end! Join in, in the comments every week! Also, there will probably be spoilers so read along with us! Excited about the young adult cancer book club? Have any suggestions for future reads? Let us know!