The Little Things

poem the moment

The little things are often bigger than we give them credit for. There’s triumph in getting out of bed and staying out of it all day. There’s dignity and strength in showing up to treatment each day. Taking a shower and getting dressed, making dinner, eating dinner. Each moment is a celebration, each day is a new triumph of existence and life. Some days my only accomplishment is feeding the cats. Some days it’s staying sane in the face of grief and the terror I feel waiting for the results of my next scans. Is it radiation necrosis? Is my brain being eaten by the radiation that killed off Larry (my tumor)? Has my cancer come back a third time? Breathing through each day and surviving daily life is cause for celebration. It’s the (big) little things that give meaning and hope to each day.

by Carol Anne Pagliotti

You can read more of Carol Anne’s writing at SoapBoxVille.

How would you respond to the writing prompt, ‘a moment’? “Everybody has a moment when you know nothing is going to be the same ever again, when one part of your life ends and another begins.  This is when you know that the changes, for better or worse are going to be coming hard and fast.  You’re on a roller coaster and all you can do is hope that your safety belt stays fastened and that you’ll come out in one piece.  These moments are what make us who we are, and I know I wouldn’t be quite me without mine.” 

This writing comes directly from one of our participants in our Unspoken Ink Creative Writing Group for young adult cancer survivors.  The participants are meeting for 2 hours each week, for 8 weeks during our Summer 2018 session.  This writing has not been edited since its original creation, showing the wonderfully raw and powerful prose coming from the courageous writing group participants each week.  If you’d like to sign up for future sessions, please email info@lacunaloft.org or sign up on our interest form.

Summer Session of the Unspoken Ink Creative Writing Workshop!

online writing workshop

Our online, Unspoken Ink: Creative Writing Workshop is designed to take you on a journey through your cancer diagnosis and into your survivorship with a small group of your young adult cancer survivor peers. Each 8-week Writing Workshop consists of a weekly writing night attended via online video chat. We will get to know one another in an intimate, 18 person setting and address issues that transport us from initial diagnosis into the new normal and survivorship.

Update: The Summer Session is now full.  Please fill out the interest form below to be notified when registration opens for our next session!

Where: Online video chat. We’ll send you more information about joining after you register. Please have a microphone headset and a webcam.

Who: Young adult cancer survivors and caregivers.

When: The writing group meets for 2 hours each week, for a period of 8 weeks. A commitment to attend each week is important to group continuity and in creating a safe space. Please be on time.

How does it work:

  • This workshop uses the Amherst Writing and Artists (AWA) Method.  The facilitator provides a writing prompt and you can use that prompt in any way you’d like to create a story over a set amount of time. Once we’ve finished our writing (yes, the facilitator writes too!), everyone is given the opportunity to read their writing out loud. Though sharing is optional, hearing your own story and hearing someone else’s teaches us about our experiences and our stories. Once the piece is read, we reflect on the writing – what did we like, what stood out, what did we remember. Everything is considered fiction so we do not respond to the writer as a support group may, but keep the focus on the writing.
  • Sometimes the prompts are about cancer, sometimes indirectly related to cancer, and sometimes not about cancer at all. Above all, the writing program emphasizes that we are more than a diagnosis.
  • Following each weekly session, you may decide to submit your writing to Mallory (mallory@lacunaloft.org) for publication on LacunaLoft.org in their Young Adult Voices program section. This is not mandatory!

 

Silence Of Life

unspoken ink writing group

I miss the simplicity of just being. The hustle and bustle of this thing we call life is utterly stressful and noisy. All the distractions are blinking like neon lights. What’s amazing is when you pause and embrace the silence.

I never thought I could meditate, let alone make it a daily habit. Now I must have 15-20 minutes of pure silence a day, whether thru a guided meditation, music or just sitting. Once I understood that meditating and mindfulness does not mean totally clearing the mind, but it’s letting the thoughts come, release them and coming back to center. I truly see the value in it.

As a talker who used to work in radio and TV, noise used to fill the silence.

Now I see it’s the time in silence that is filling my soul.

by Megan-Claire Chase

You can read more of Megs writing at Life on the Cancer Train.

How would you respond to the writing prompt, From an animal’s point of view?

This writing comes directly from one of our participants in our Unspoken Ink Creative Writing Group for young adult cancer survivors.  The participants met for 2 hours each week, for 8 weeks during our Winter 2018 session.  This writing has not been edited since its original creation, showing the wonderfully raw and powerful prose coming from the courageous writing group participants each week.  If you’d like to sign up for future sessions, please email info@lacunaloft.org or sign up on our interest form.

Infertility

infertility after young adult cancer

I saw the cutest little boy at Target, maybe he was two or something, wearing the most darling sweater vest and bowtie. I couldn’t stop looking at him. Before I knew it, I was crying; just silent tears rolling down my cheeks. It was a punch in the gut because cancer took away my option to have my own child.

Yes, I know there are many children who need a home and could foster or adopt. I actually want to smack people when they make that insensitive comment. Why can’t they see how much it hurts me to know I’ll never have someone who favors me or inherits my talent?

What is my legacy?

I somehow ended up in the children’s section while at Target. I couldn’t stop the torture. Every tutu, dress, bowtie and little shoes caused a tear and my breath to catch in my throat.

It’s funny that I think about children at least once a day. I had convinced myself pre-cancer that I would never have any and didn’t want any. They are too expensive. What if they are premature like I was and filled with health problems? Plus, I’m single, so end of story.

Yet, when my oncologist and gynecologist said it’s best to have a hysterectomy and bilateral salpingo oophorectomy to lower my chances of a breast cancer recurrence since my body suffered such horrible sided effects from all the post treatment for pre-menopausal women, my heart stopped. The final step was to medically induce me into menopause many, many years early and hope my body will respond well to the post treatment for menopausal women. Plus, the surgery would completely prevent me getting cervical, ovarian, uterine cancer and endometriosis. Sigh.

I collapsed into tears. Do I want to live or die? Thanks to cancer, my insides are already dead.

by Megan-Claire Chase

How would you respond to the writing prompt, Reproductive Endocrinology & Infertility?

This writing comes directly from one of our participants in our Unspoken Ink Creative Writing Group for young adult cancer survivors.  The participants met for 2 hours each week, for 8 weeks during our Winter 2018 session.  This writing has not been edited since its original creation, showing the wonderfully raw and powerful prose coming from the courageous writing group participants each week.  If you’d like to sign up for future sessions, please email info@lacunaloft.org or sign up on our interest form.

Have A Chipper Weekend

young adult cancer

We’ve got another board member at Lacuna Loft now!  I’m excited to introduce him to you. (soon!)  It’s like having another person in the office every day!  How was your week this week?

Here are some foggy weekend links from around the interwebs…

[list type=”like”]
[list_item]why your lungs burn in cold weather[/list_item]
[list_item]the coolest cinemagraphs[/list_item]
[list_item]how are you liking the book club so far?[/list_item]
[list_item]wondering how you can help?[/list_item]
[list_item]a quick hair tutorial[/list_item]
[list_item]three cheers for books about gay bunnies![/list_item]
[list_item]best photo I’ve seen ALL WEEK[/list_item]
[/list]

Have a foggy weekend Lacuna Lofties!

Imagine

writing group for cancer survivors

I imagine a world where people see beyond color, shape and size.
I imagine a world where I can be accepted for ME and not be told I’m a sellout or that I “speak well.”
I imagine a world where employers work to understand how cancer affects us.
I imagine a world that loves and no one is homeless.
I imagine a world where hugs are a daily start to each day.
I imagine a world where the mind is free from the constant fear and anxiety of cancer coming back.
I imagine a world where all my true friends and I lived not only in the same state but same neighborhood.
I imagine a world where loneliness is a thing of the past.
Imagine that…

by Megan-Claire Chase

How would you respond to the writing prompt, imagine?

This writing comes directly from one of our participants in our Unspoken Ink Creative Writing Group for young adult cancer survivors.  The participants meet for 2 hours each week, for 8 weeks during our Winter 2018 session.  This writing has not been edited since its original creation, showing the wonderfully raw and powerful prose coming from the courageous writing group participants each week.  If you’d like to sign up for future sessions, please email info@lacunaloft.org or sign up on our interest form.

Have A Foggy Weekend

It felt good to be back to posting on the blog this week!  We eased in a bit with a new book club post (yes, love it when a new round starts!) and a few others.  Fog is constantly in the air here in Northern California where the Lacuna Loft office is.  How have you been doing?  How has spring been in your neck of the woods?

Here are some foggy weekend links from around the interwebs…

[list type=”like”]
[list_item]our fears about cancer are just as real as our fears about spiders[/list_item]
[list_item]courage over comfort[/list_item]
[list_item]the cutest pin around (no sponsorship involved…just seriously so cute!)[/list_item]
[list_item]a week of healthy dinners[/list_item]
[list_item]25 amazing foreign words[/list_item]
[list_item]being in space for a year[/list_item]
[list_item]this is where we find many of our pictures[/list_item]
[/list]

Have a foggy weekend Lacuna Lofties!

Have A Superb Weekend

young adult cancer

How has your week been?  Spring is in the air over here and we’ll be taking next week off for a short, spring break!

Here are some superb weekend links from around the interwebs…

[list type=”like”]
[list_item]ask your Awkward Auntie a question![/list_item]
[list_item]share your origin story with us![/list_item]
[list_item]a doggy who is friends with an owl?![/list_item]
[list_item]breakfast ideas for the win[/list_item]
[list_item]10 hiking trails that will blow your mind[/list_item]
[list_item]our 4th Writing Group session just finished! want in on the action next time?  Sign up here![/list_item]
[list_item]kitchen tricks from Julia Child[/list_item]
[/list]

Have a superb weekend Lacuna Lofties!  See you on March 12th!

Beep, You’re Alive

online unspoken ink creative writing group

Ah, the loud, annoying beeps that reminds you that you’re still alive. That sound echo’s in the infusion room. No more watching Grey’s Anatomy or The Good Doctor. Seeing those machines on TV make it too close to home.

Heartbeat, pulse – oh so rapid.

That shortness of breath was for real. Lovely how the infusion nurse says to take long, deep breaths and relax. Why is the machine turned?! “Show me the numbers!!!,” I say in a Jerry Maguire voice. Turns out, pulse was rapid, heartbeat rising. No wonder she only turned the machine after appearing to calm down.

Why does the cord and line to the port always get tangled? I don’t want to tango with you. My dance card is full.

by Megan-Claire Chase

How would you respond to the writing prompt, reduced to vital signs?

This writing comes directly from one of our participants in our Unspoken Ink Creative Writing Group for young adult cancer survivors.  The participants meet for 2 hours each week, for 8 weeks during our Winter 2018 session.  This writing has not been edited since its original creation, showing the wonderfully raw and powerful prose coming from the courageous writing group participants each week.  If you’d like to sign up for future sessions, please email info@lacunaloft.org or sign up on our interest form.

Have A Rose Weekend

YSC Summit

I’m in Orlando, FL (again!) this weekend at the Young Survival Coalition Summit as an exhibitor!  Our 2nd weekend in Orlando and our 3rd time at the YSC Summit!

Here are some rose weekend links from around the interwebs…

[list type=”like”]
[list_item]lessons froma mini-fridge[/list_item]
[list_item]20 healthy meals you can meal prep this week[/list_item]
[list_item]tips to stay productive[/list_item]
[list_item]the happiest vacations to go on this year[/list_item]
[list_item]keep in touch this weekend through our instagram![/list_item]
[list_item]our 4th Writing Group session just finished! want in on the action next time?  Sign up here![/list_item]
[list_item]baby goats for the win![/list_item]
[/list]

Have a rose weekend Lacuna Lofties!