Many cancer patients can rattle off the names of their treatment and maintenance medications without a second thought. But the road from drug development to patient use is long – and many of us never give a second thought to how these treatments are invented, tested, and implemented.
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There is clearly a need for research and healthcare institutions to pay more attention to AYAs to help mitigate negative outcomes. So, the most urgent question becomes… What can be done to help?
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Here at Cactus Cancer Society, we’re always interested in amplifying the voices and experiences of young adults facing cancer, and making sure this population is represented in research. Check out this research opportunity looking at humor among friends during cancer!
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Our friends over at the Coleman Supportive Oncology Collaborative and UChicago Medicine want to improve the support and care they offer to adolescents and young adults, and they’d love to hear from you!
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We want to hear about cancer experiences from men and Black, indigenous, persons of color voices like yours to ensure our research represents everybody!
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Lacuna Loft’s very own Mallory Casperson is an investigator in a new study with researchers at Kaiser Permanente to improve the health and healthcare of adolescent and young adults (AYAs) who may have had cancer. We need to hear about cancer experiences like yours to help shape our research. Topics will include your experiences with medical care, your life experience, and your thoughts on research participation.
We would like to recruit 30 AYAs to participate in a sixty-minute telephone interview. We will talk about cancer experiences and what researchers should know.
People who complete an interview will receive a $40 Target, Amazon, or Starbucks gift card for their participation.
If you are interested in participating, please click on the following link to answer a few questions to see if you are eligible. If you are eligible and selected, a member of the study team will follow up with you to schedule your interview.
Click here if you’re interested: https://bit.ly/2SU9aU8
With sincere thanks,
Marlaine Figueroa Gray, PhD – Kaiser Permanente Washington
Mallory Casperson – Lacuna Loft
Lacuna Loft really enjoys sharing the news on research studies that benefit young adult cancer patients, survivors, and caregivers. Check out this announcement for one from Celina at Cedars-Sinai!
I am part of a research team at the Samuel Oschin Comprehensive Cancer Institute at Cedars-Sinai Medical Center. I am writing to invite you to participate in our research study about promoting extracurricular activities among early childhood cancer survivors. We hope to learn more about childhood cancer survivors’ experiences participating in extracurricular activities.
If you are a parent of an early childhood cancer survivor (ages 10-18), please consider enrolling in our study. You and your child will participate in one interview, 30 to 60 minutes in length. (Please note that parents and children 12 or older have the option to participate in a second interview). As a thank you for your participation, you will receive an Amazon gift card worth $30 in your currency.
If you’d like to participate or have any questions about the study, please email: Celina Shirazipour, Ph.D. @ celina.shirazipour@cshs.org
Feeling overwhelmed by all of the practical and financial issues that come with a cancer diagnosis? Our partner Triage Cancer is hosting 2 conferences in 2021, for individuals diagnosed with cancer, caregivers, and oncology healthcare professionals. Check out more information at http://TriageCancer.org/Conferences.
Lacuna Loft is pleased to partner with Cancer and Careers on the 11th annual National Conference on Work & Cancer, being held virtually on Friday, June 25, 2021!
This FREE virtual event will explore the complexities working people face as they try to balance their cancer treatment and recovery with employment. Topics will include job search, legal issues, working during treatment, managing stress and more. CEUs/PDCs will be offered for nurses, social workers and HR professionals.
For more details or to register, please visit www.cancerandcareers.org/conference.
The Behavioural Sciences Unit, a research group in Sydney, Australia is looking for cancer survivor consumer representatives aged 15-39 to provide feedback on some brand new study results from the AYA Global Accord international research study. Some of you may have provided input on this study in 2018 when it was first applying for funding. This global study is being led by Dr. Ursula Sansom-Daly, a psychologist and researcher whose work focuses on AYA cancer, and she is working with a team of international experts from Australia, New Zealand, USA, Canada, and the UK.
The study involved AYA healthcare professionals completing an online survey. This survey aimed to find out what an international group of healthcare professionals thought ideal end-of-life communication with adolescents and young adults with cancer should look like, and what type of training they wanted to improve their skills in this area.
The first thing we’d be seeking your help with would be commenting on the results from this survey based on your experience, via an online survey format.
Later on, there will also be an opportunity to join a teleconference with other young cancer survivors and the research team to discuss your perspectives on the research findings some more. Consumers will also have the opportunity to contribute to a publication (an academic journal article) about consumers’ views.
If you’re interested, fill out the form below and Lacuna Loft will forward your information along to the research group!
