Speaker Series Talk: Finding Purpose – Anjali

young adult cancer speaker

Our very first Speaker Series talk is live!  Check out Anjali’s talk on Finding Purpose in the video below!

I had a great time chatting with Anjali about her passion project and how it arose after a very purposeful search.  You’ll find tips on going about your own search for purpose and lots more.

After experiencing young adult cancer, as a survivor or a caregiver, many of us have experienced feeling lost in the Now What? feeling.  After the treatments end, or if there isn’t an end, redefining how to move forward is different for everyone.  What seems to be universal, is needing to develop a new normal because that old one just doesn’t fit quite like it used to!  Anjali went out, in a very systematic fashion, to redefine what purpose meant for her.  Are you searching for purpose again?  Are you trying to find your way after young adult cancer in a world that seems a little different than before?  Then check out this talk!

Finding Purpose: Speaker Series Program Announcement!

young adult cancer speaker

A few days ago we announced our newest program here at Lacuna Loft, Speaker Series!  Now I’m super excited to announce that our first Speaker Series Talk will launch on Wednesday, August 2nd!  Starting on that day, you’ll be able to watch Anjali talk about Finding Purpose!  While the talk won’t be live, we’d love for you to submit your questions!  After reading a little abstract on the talk, fill out the short form at the bottom of this post with all of your questions!  Submit as many as you want and Anjali will do her best to answer them at the end of her talk!

After experiencing young adult cancer, as a survivor or a caregiver, many of us have experienced feeling lost in the Now What? feeling.  After the treatments end, or if there isn’t an end, redefining how to move forward is different for everyone.  What seems to be universal, is needing to develop a new normal because that old one just doesn’t fit quite like it used to!  Anjali went out, in a very systematic fashion, to redefine what purpose meant for her.  Are you searching for purpose again?  Are you trying to find your way after young adult cancer in a world that seems a little different than before?  Then check out this talk!

In June 2016, Anjali set out on a mission to find more meaning in her work. She set a personal mission to meet 365 people in a year to see where the journey would lead her. The secret hope was that by June 2017, she would be doing work that meant something to her, with a team of amazing people, and a great boss. In this speaker series, Anjali shares the ideas, feelings, and framework she used to get from confusion to a passion.

Announcing Our New Speaker Series Program

young adult cancer speakers

I am so happy to announce today that we’ve launched our Speaker Series!  You’ll hear monthly from various speakers, always with young adult cancer in mind.  We’ll hear personal stories, we’ll hear about searching for purpose, genetic testing and hereditary cancers, about how legislation affects the young adult cancer community and about how you can use your voice to change the world, and more.

How will it work?  We’ll announce a Speaker Series Talk ahead of time and allow you all to submit questions to the speaker.  Then the talk will go live at 5 AM on the scheduled date.  You’ll be able to watch the talk whenever you’d like and hear your questions answered on the topic at hand.  Together we’ll learn and grow and hear answers to those tough questions.

Stay tuned later this week for our first Speaker Series Talk announcement!

If you have an idea for a talk that you’d like to hear or you’d like to give, fill out the form below!

Lacuna Loft Celebrates 2 Years As A Nonprofit!

lacuna loft

Today, April 7, 2017, Lacuna Loft celebrates our 2-year anniversary of being a nonprofit organization!!!

In honor of our two years, we’re going to spend the next month and a half sharing our top 30 posts.  Get ready to read (or re-read) some wonderful pieces of wisdom from so many of our contributors.  Our book club’s posts will continue on as normal on Mondays but we’ll be disrupting our friday, link round up posts.

How do we choose the top 30, you ask?  Directly from you!  We’ve dug into our analytics and have identified the 30 most popular posts (out of all 763 articles that have been published before today).  I’m really looking forward to walking down memory lane and picking out some of the gems hidden in our archives.  These articles feature the voices of many, many courageous young adult cancer survivors and caregivers who stepped forward, showed up, and helped someone know that they weren’t alone.  These 30 are the best of the best and I’m very happy to share them with you again!

Like what you see and want to add your voice?  Email info@lacunaloft.org and we’d love to chat with you!

P.S. Lacuna Loft’s other programs are still going strong during this next month of flashbacks!  Keep up to date on our social channels!  Instagram, facebook, and twitter!

Behind the Scenes: Where You Can Meet Lacuna Loft In Person This Year

cancer advocacy

Here at Lacuna Loft, we are all about the behind the scenes, nitty-gritty of running an organization. When I started Lacuna Loft, I relied on some very communicative and helpful small business owners to help guide me…along with a load of library books!  In the Behind the Scenes series we’ll talk about the various stages of the development of Lacuna Loft and some of the lessons we’ve learned along the way. You’ll hear often from me, the Founder and CEO of Lacuna Loft, as well as from our Design Guru, board members, contributors, and more!

Today we’ll let you know where you can meet Lacuna Loft in person this year!

If you’ve missed other posts in our Behind the Scenes series, check out a day in the life of Lacuna Loft’s founder, Lacuna Loft’s First Days, an FAQ with our founder (me!), and Lacuna Loft’s Board of Directors.

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Every year, Lacuna Loft travels to a number of conferences and events to interface with young adult cancer patients, survivors, and caregivers, as well as the healthcare providers who care for these young adults.  This year we are traveling to several (including one this weekend!) so we thought we’d let you know where you might be able to meet a member of the Lacuna Loft team in person!

March 10 – 11, 2017 – Young Survival Coalition Summit in Oakland, CA.  This conference is specific to young breast cancer survivors and their caregivers and this year, it is right in our backyard!  Oakland, CA is where Lacuna Loft’s office is!  If you’re a breast cancer survivor, this conference is a fabulous opportunity to meet other survivor sisters and to learn about some great resources while you’re at it.

April 27 – 29, 2017 – Stupid Cancer’s CancerCon in Denver, CO.  I am on the Steering Committee for this event again this year and it is not to be missed.  If you are looking to meet a bunch of other young adult cancer patients, survivors, and caregivers of every diagnosis under the sun, CancerCon is the place to go!

May 4 – 6, 2017 – Oncology Nursing Society’s Annual Conference in Denver, CO.  The ONS Congress is a new event for Lacuna Loft and I am really looking forward to it.  My mother was a member of the Oncology Nursing Society for a number of years and I’m anxious to meet as many of the wonderful and dedicated oncology nurses as possible.

June 2 – 6, 2017 – American Society of Clinical Oncology’s Annual Meeting in Chicago, IL.  ASCO is a new event for the Lacuna Loft team this year as well.  We have a booth space in the Patient Advocate area and are ready to meet and greet with as many healthcare providers as possible!

There are a few other events that we may attend this year but nothing else is set in stone.  Will you be at any of these conferences?  If so, one of our team would love to meet you!

Let us know if there is something in particular that you’d like shown as part of our Behind the Scenes series!

Behind the Scenes: Lacuna Loft’s Board Of Directors

board of directors

Here at Lacuna Loft, we are all about the behind the scenes, nitty-gritty of running an organization. When I started Lacuna Loft, I relied on some very communicative and helpful small business owners to help guide me…along with a load of library books!  In the Behind the Scenes series we’ll talk about the various stages of the development of Lacuna Loft and some of the lessons we’ve learned along the way. You’ll hear often from me, the Founder and CEO of Lacuna Loft, as well as from our Design Guru, board members, contributors, and more!

Today we’ll introduce you all to our Board of Directors working hard behind the scenes of Lacuna Loft!

If you’ve missed other posts in our Behind the Scenes series, check out a day in the life of Lacuna Loft’s founder, Lacuna Loft’s First Days, and an FAQ with our founder (me!).

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For those of you unfamiliar with the nonprofit world, the Board of Directors is a group of individuals all nonprofits in the US need to have.  Board Members are responsible for making sure the organization’s activities remain in line with the organization’s goals and mission.  The Board of Directors at Lacuna Loft are very much a working board, which means that they not only help with the overall strategy of the organization but also in some of the day-to-day activities such as program development and fundraising.  These individuals are a huge asset to the organization and I’m not sure where I’d be without their hard word and dedication.  We are a small Board which means that everyone is very involved and decisions can be made quickly.  Having said that, we are looking to grow in the coming months.  If you’re interested in learning more about what being a Board Member looks like, email mallory@lacunaloft.org and we can chat!

Lacuna Loft is also very fortunate to have recently formed a Scientific + Medical Advisory Board.  We’ll let you meet them in a few weeks!  These wonderfully talented individuals will be helping with overall direction, impact, and evaluation of our programs.  For any young adult cancer survivors or caregivers out there, Lacuna Loft is currently forming a  YA Cancer Survivor + Caregiver Advisory Board.  If you’re interested in joining or learning more about this volunteer opportunity, please email mallory@lacunaloft.org and I can send you some more information!

Without further ado, please meet our wonderful Board of Directors!!!

Mal-picture-tiny-180-180Mallory Casperson – CEO + Founder, President, Board of Directors
Mallory has an MS and half a PhD in Aerospace Engineering from the University of Illinois at Urbana-Champaign. Several months after serving as a primary caregiver for her mother, during the final months of her life, Mallory was diagnosed with Hodgkin’s Lymphoma at the age of 24. Several years after her diagnosis, Mallory realized that her new survivorship needs didn’t fit into the work-life balance mold enforced by her graduate school research schedule. After leaving graduate school, Mallory was challenged to ‘do anything she wanted’ for an entire year. That year, Lacuna Loft was launched. She now manages operations, programs, and development at Lacuna Loft where online support programs and resources are provided to young adult cancer survivors in the comfort of their own homes. Mallory is an avid lover of animals, running, swimming, hiking, being outside, reading, crafting, and TV or movie marathons.

 

Patti-picture-tinyPatricia McDonald – Treasurer, Board of Directors
After first her young husband’s, and later her father’s difficult battles with cancer, Patti co-founded a cancer support center to encourage, educate, and empower patients and families experiencing cancer in their lives. She later went on to serve as Founding Executive Director for a second cancer wellness center in the Chicago area. Patti serves as a Lacuna Loft Board Member to do what she can to ensure young adults facing cancer have access to the innovative, age-appropriate, and impactful programs and resources they need to improve their quality of life and well-being – no matter how challenging the circumstances. With over 20 years of experience as a nonprofit leader and fundraising executive, Patti is currently working in advancement for higher education.

 

shelly-picture-tiny-180-180Shelly Whitsitt – Secretary, Board of Directors
Shelly works as a director of research and strategy at a qualitative market research and creative agency, Fusion Hill. She started her career in marketing at a start-up in South America and her first experience with qualitative research was with women farmers in India. At Fusion Hill, she enjoys turning rich, qualitative research into key insights that help clients achieve their business goals. Shelly has a BA in Psychology and Spanish and an MBA with a concentration in Marketing from the University of Illinois at Urbana-Champaign. Key experiences in her MBA program include a yearlong project on Product Innovation in Subsistence Marketplaces, and serving as CEO of a student-run 501(c)(3). Shelly enjoys spending time with family and friends, TV binging on Netflix, or getting cozy with a book. She loves traveling and exploring new cultures, trying new and different foods, and being active outdoors.

 

Sarah-Goodell-picture-tiny-180-180Sarah Goodell – Member, Board of Directors
Sarah is the newest member of the Lacuna Loft board and is thrilled to have the opportunity to contribute to this amazing organization. She is a Senior Analyst in Digital Communications and Corporate Social Responsibility at Mead Johnson Nutrition where she works on a variety of projects, from managing social media campaigns to coordinating CSR efforts. Prior to her work here, she was a Program Manager at Cancer and Careers, where she ran a number of their programs as well as coordinated social media and PR initiatives. During her years working in the cancer community she became very passionate about supporting survivors, particularly young adults, and helping them thrive after a diagnosis. Sarah is originally from Minneapolis but currently lives in Chicago, and is an avid rollerblader, yogi, and brunch enthusiast.

Let us know if there is something in particular that you’d like shown as part of our Behind the Scenes series!

Tell Your Community About Lacuna Loft

Lacuna Loft

As we start nearing the end of 2016, Lacuna Loft would like to thank you for participating in our programs.

We hope you loved your experience!

Lacuna Loft exists to make programs and support available to you, wherever you are, whenever you want.  To make these programs available to every young adult cancer survivor and caregiver we need your help.  Use the hashtag, #JustLikeMe, to tell your communities what Lacuna Loft means to you.

Let your community know that you deserve age-appropriate support and connection to other young adult cancer survivors and caregivers who understand!  Encourage your community to join our Lacuna Loft Flight Crew, the amazing community of donors who directly supports young adults facing cancer, just like you!

You know, better than anyone, the consequences when one young adult is diagnosed with cancer every eight minutes.  Your future is changed in an instant.  Lacuna Loft offers connection to other young adult cancer survivors, access to emotional support that addresses your age-specific needs, and encouragement from other young adults who understand, all wrapped conveniently in a website, accessible 24/7, with all of our programs offered free of charge.

This is why we need your help.

Lacuna Loft is a community funded charity and financial support keeps our programs running.  Can you tell your community what Lacuna Loft means to you?  Partner with us, as we grow, making sure that no young adult cancer survivor or caregiver faces cancer alone.  Using the hashtag, #JustLikeMe, we emphasize how alike we all are, as young adult cancer survivors and caregivers.

Share on your social channels, let your community know that Lacuna Loft’s programs are important to young adult cancer survivors and caregivers!

Encourage them to donate to Lacuna Loft!

 

You can use some of our Shareable language!
Looking to donate to charity this holiday season? @LacunaLoft offers programs for #yacancer survivors, #JustLikeMe https://cactuscancer.wpengine.com/donateYour donation provides a community for #yacancer survivors, 24/7 @LacunaLoft #JustLikeMe https://cactuscancer.wpengine.com/donate

Your donation provides a community for #yacancer survivors, 24/7 @LacunaLoft #JustLikeMe https://cactuscancer.wpengine.com/donate

P.S.  Looking for some easy, shareable images?  Email info@lacunaloft.org and we can send you some!

Welcome Mary!

Lacuna Loft is excited to continue introducing more young adult voices! These great folks represent a variety of perspectives on the myriad of topics covered here at Lacuna Loft. Before everyone starts really getting into the nitty-gritty of all they have to say, we wanted to introduce them a bit. Without further ado, here is Mary!

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Mary was diagnosed with advanced interstitial cystitis in 2006 and pheochromocytoma not long thereafter.  She is a graduate student pursuing her Master of Public Health (MPH) with a focus on health policy and management.  One of Mary’s passions is helping college and university students obtain and utilize the disability services they need to be successful.  She enjoys spending time with her family, reading, and snuggling with her cat Tresor, one her family’s six cats.

Welcome Charlene “Shar”! My Story, My Journey, My Testimony

Lacuna Loft is excited to continue introducing more young adult voices! These great folks represent a variety of perspectives on the myriad of topics covered here at Lacuna Loft. Before everyone starts really getting into the nitty-gritty of all they have to say, we wanted to introduce them a bit. Without further ado, here is Charlene!

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Hello All! My name is Charlene and I am a wife, a mom of 3 amazing kids (ages 23, 14, and 4) and a 2x breast cancer SURVIVOR. I was diagnosed February 1, 2013, a couple of weeks before my birthday. Some birthday present huh! My cancer was ER/PR positive in the left breast. I was diagnosed very early so I had options, either a lumpectomy with radiation or mastectomy. I chose the latter. You see, my mom is also a breast cancer survivor, diagnosed at ages 32 and 65, so that played a big role in my decision. We are both did genetic testing and tested BRCA negative, so I decided to just have a single mastectomy. I was trying to save what I thought was a healthy right boob (to my surprise not so much). I had immediate reconstruction, I went with a TRAM flap. Somehow, after all of that surgery, I felt that I should have just gone ahead and done a bilateral mastectomy rather than the single. I knew in my soul that something just wasn’t right.  After having my mastectomy and recon on April 1, 2013, I had breast reduction on the right breast only to find out that there was cancer in that breast as well. My right breast was Triple Negative (TNBC). So 20 days after having a brand new perky boob, I was back in surgery to have my second mastectomy, again with immediate reconstruction. This time with my reconstruction I had to go with a LAT flap (latissimus dorsi). Since then I’ve had a ton of surgeries, from implants to revisions, I have about half a dozen scars to show for it. I’m not ashamed of my scars, I have come to embrace them. They are apart of who I have become, behind my scars is my story, my journey, my testimony. Breast cancer has forever changed me, and it is my goal to be an inspiration to others. I am my sister’s keeper!