Help End Surprise Billing

old fashioned telephone

Here at Lacuna Loft, we find it extremely important to let you know when something comes across our radar which impacts you and other young adult cancer survivors like you.  Today is one of those days!  We just learned of this advocacy opportunity from LLS and needed to share!  Take action TODAY!

If you’ve ever received a medical bill that you weren’t expecting, you probably felt confused, worried – maybe even angry. And you’re not alone.

Surprise billing has become widespread and can have a huge impact on cancer patients and their families. It’s what happens when a patient who has insurance visits an in-network provider or facility, thinking they’re covered. But at some point during the visit, they see a doctor or get a lab test that is out-of-network – without even knowing it.

Then, weeks later, they get the bill – and it can total thousands of dollars that they weren’t expecting to pay for the care they received.

Surprise billing can be financially devastating. It is absolutely crucial that lawmakers take action to protect patients.

Right now, Congress is considering legislation that would protect patients from surprise medical bills without increasing their costs. Call your representative right now and tell them to stand with cancer patients and put an end to surprise billing: Dial 1-844-906-0789 for more information and to be connected to your representative’s office.

Cancer patients have enough on their plate without having to worry about unexpected medical bills. Congress needs to end surprise billing to protect patients, no matter where they live or what plan they have.

There is strong bipartisan support for a solution to surprise billing – and this is a key moment. As congressional committees are debating legislation next week, we need them to hear from you that you expect them to get this done.

Your member of Congress needs to hear from you: It’s time to put an end to surprise medical billing that can financially devastate cancer patients.
Call 1-844-906-0789 now.

Have A Frosty Weekend

Snow, snow, and more snow!  Even though Winter is here now though, we are gearing up for our Spring conference season.  Check out where we’ll be and come say hi if you can!

Here are some frosty weekend links from around the interwebs…

[list type=”like”]
[list_item]cute winter pajamas[/list_item]
[list_item]the best swag around[/list_item]
[list_item]did you hear about our new library?[/list_item]
[list_item]use Amazon Smile and choose Lacuna Loft when shopping online[/list_item]
[list_item]check out our conference schedule to see where you can meet us in person[/list_item]
[list_item]33 favorite things[/list_item]
[list_item]scar stories[/list_item]
[/list]

Have a frosty weekend Lacuna Lofties!

So, What Exactly Is An AYA?

Now that you’ve joined the Young Adult Cancer Club…pretty cool club, right? (yuck!)…you know, better than anyone around you probably, what AYA means.  AYA, or Adolescent and Young Adult, has been taken by the oncology community to denote those survivors diagnosed with cancer between the ages of 15-39.

Looking for a little bit more than that though?  Want to know where these ages come from in the research?  Look no further than this article written by a young adult cancer survivor and researcher, Ximena.

“[Researchers] argue that creating research protocols and programs for those with cancer ages 15-39 is a far too generalized approach in that it does not take into account the person’s developmental stage. A 15-year-old who is starting to explore their identity and separate from their parents, for example, will have far different needs than a 35-year-old who is caring for their young children.”

Read the entire article here.

 

Have A Winter Weekend

frozen lake in forest

Snow is on the way for a lot of you, along with very cold temperatures.  Stay safe, stay warm, and attend a program this month in your pajamas! 😉

Here are some winter weekend links from around the interwebs…

[list type=”like”]
[list_item]cute winter pajamas[/list_item]
[list_item]the best swag around[/list_item]
[list_item]did you hear about our new library?[/list_item]
[list_item]use Amazon Smile and choose Lacuna Loft when shopping online[/list_item]
[list_item]interested in raising money to support Lacuna Loft?[/list_item]
[list_item]follow us on facebook to connect with other survivors[/list_item]
[list_item]yummy winter veggies[/list_item]
[/list]

Have a winter weekend Lacuna Lofties!

Where We’ll Be In 2020

busy meeting

Lacuna Loft has over a dozen programs running and almost everything happens online.  That means that no matter where you live, you can join in on the great connection with other young adult cancer patients, survivors, and caregivers that happens behind our virtual doors.  I have to say ‘almost everything’ though because we do attend in-person conferences and events throughout the year and whenever we do, it is always such a delight to meet program participants in person too!  If you are attending one of the events where we’ll be, make sure you say hi!  We’d absolutely LOVE to meet you!

This year we are attending:

March-June is conference season in the oncology world and we’ll be all over the place talking about young adult cancer survivors to anyone who will listen!

Have A Masquerade Weekend

Our online auction closes Saturday, January 11th at 11:59 pm PT!  There are so many fun things to bid on from gift baskets to one-of-a-kind experiences, handmade artwork to sports memorabilia, and more!  Get in on the action and directly fuel our programs!

Here are some masquerade weekend links from around the interwebs…

[list type=”like”]
[list_item]the pregnant with cancer network[/list_item]
[list_item]a singing corgi[/list_item]
[list_item]did you hear about our new library?[/list_item]
[list_item]use Amazon Smile and choose Lacuna Loft when shopping online[/list_item]
[list_item]interested in raising money to support Lacuna Loft?[/list_item]
[list_item]follow us on facebook to connect with other survivors[/list_item]
[list_item]New Year’s Resolutions[/list_item]
[/list]

Have a masquerade weekend Lacuna Lofties!

Bid, Bid, Bid!

Our online auction closes Saturday, January 11th at 11:59 pm PT!  There are so many fun things to bid on from gift baskets to one-of-a-kind experiences, handmade artwork to sports memorabilia, and more!

When we decided to postpone the in-person gala, we immediately knew we needed to bring the awesome auction items online to our broader community.  Our courageous survivors are spread all around the country and the world.  Now you can share the auction with your friends and family.  All proceeds go directly to fuel our programs so have some fun along the way and grab some great stuff!

In addition to the silent auction, we also have Lacuna Loft swag for purchase.  Tees and hoodies, as well as limited-edition bags and pint glasses, are available and all proceeds go directly to supporting Lacuna Loft programs.

Get in on the action!

Have A Festive Weekend

holiday tabletop with snowflake

The end of the year is almost upon us!  Next week we have the start to our very first online auction so stay tuned for more details.  Plus, there are still a few programs left before the decade ends.

Here are some festive weekend links from around the interwebs…

[list type=”like”]
[list_item]our latest Speaker Series video is AMAZING[/list_item]
[list_item]a singing corgi[/list_item]
[list_item]did you hear about our new library?[/list_item]
[list_item]use Amazon Smile and choose Lacuna Loft when shopping online[/list_item]
[list_item]interested in raising money to support Lacuna Loft?[/list_item]
[list_item]follow us on facebook to connect with other survivors[/list_item]
[list_item]fun holiday traditions[/list_item]
[/list]

Have a festive weekend Lacuna Lofties!

Tell Us Your Story!

hands

Are you a young adult cancer survivor or caregiver?  Are you ready to tell your story to help someone else who is going through what you went through?

In the middle of the night, someone out there is wondering if they are the only one who has ever gone through young adult cancer.  They are feeling alone, isolated, and wanting to feel connected to someone who understands.  You can help someone, just like you, going through young adult cancer by sharing your story.  Our contributors are courageous tellers of their stories, giving back to a community of young adult cancer fighters and thrivers.

Your story matters.

To add continually to the stories we share, we need *YOU*!  Sit down, have a virtual coffee with us, and share your voice!  When you fill out the form below, we’ll contact you with more info!

Have A Celebration Weekend

celebration pineapple

The last month of the decade is upon us!  Time for festive drinks, cozy cuddles, loving your neighbor, and lots of great programs here at Lacuna Loft for young adult cancer patients, survivors, and caregivers!

Here are some celebration weekend links from around the interwebs…

[list type=”like”]
[list_item]our latest Speaker Series video is AMAZING[/list_item]
[list_item]can’t believe the next book club is almost here[/list_item]
[list_item]did you hear about our new library?[/list_item]
[list_item]the best winter cocktails[/list_item]
[list_item]do you have any sex/relationship after young adult cancer question?[/list_item]
[list_item]cringe worthy phrases that are ruining your cover letter[/list_item]
[list_item]a best friend gift guide[/list_item]
[/list]

Have a celebration weekend Lacuna Lofties!